Was up early with Emmett and got Elliott off to school on time. Lizze called Gavin off of school because of his appointments today. We have Dr. R today and then we are off to Akron Children's Hospital to the cardiologist. After that I have to get Elliott and bring him home. Then it's off to Dr. Patti tonight for Gavin's therapy. So we have several Autism related appointments, 1 cardiac and 1 "other" mental health appointment. They are condensed in to "only" 3 separate appointments. More to come...... Posted to WordPress via Autism Aware and midNIGHT ROM powered Epic 4G

Autism complicates everything for my family. Gavin is by far the complex child we have. By complex I mean he has the most difficult issues to deal with. Here's the latest example. Gavin has a history of chest pain. We've had him checked out many times and everything is always ok. The reason for the concern is that on his biological father's side of the family there is a history of spontaneous aortic ruptures or tears. Gavin's biological aunt died recently during child birth and she was barely 30 years old. Gavin's biological has heart related issues as well. We only have bits and pieces of information because they no longer have contact with us and even when they did they wouldnt tell us. So the concern is for good…

Emmett and I took Lizze to pain management yesterday. Lizze is in to much pain to drive much lately and we would rather not take any chances. She had a regular follow up and med check yesterday. She also talked to them about her leg pain and they said that it was "most likely" fibro related. The only thing we can do is Max her out on the Lyrica she takes to help manage the pain. That scares me for two reasons. The first is that if/when they do increase her meds she will be sleeping a lot more, at least until she adjusts (if she ever does). The second thing that scares me is the thought of Lyrica no longer working. As she reaches the max dose we will…

Gavin was hallucinating most of the night again. He real tired this morning so he's going to be fun today. Elliott was to hot last night. I was 80F yesterday and we can't open our windows for safety reasons. Emmett spiked fever last night as well. He was restless all night. Lizze is in so much pain that she can't sleep even though she exhausted. I have a busy week ahead of house work and laundry. I need to snake a few clogged drains and start looking for agencies to help with obtaining new window or portable air conditioners. I know of some but they are more for the elderly. Maybe we could be an exception ;) Have a great Monday and remember to help spread Autism Awareness. -lost and…

We have come to accept and embrace Autism in our lives. Life is always difficult and there are days (many to be honest) where I wonder why God picked me for this job. Then there are the days where maybe Emmett learns a word or Gavin goes a whole day without a meltdown. Those are the good ones. We are now facing another challenge that I don't remember if I've spoken about before. It appears as though Elliott might be dealing with ADHD as well. He is ALL over the place. This started a some months ago. I had thought it was or maybe just hoped that it was anxiety. Man, I just don't know. The only thing that holds his attention (at least at home) is his DS. He…

Gavin has been struggling more and more lately. The other day we took the kids to the park. Gavin was out of control. He pushed Emmett out of the way while trying to get to the slide. Emmett hit his head on the metal bars as a result. I made him sit off to the side for a while.  I explained to him that he MUST pay attention to the people around him. I let him come back and play.  Not 5 minutes later Emmett is walking under the monkey bars. Gavin decides he going to swing across them but doesn't pay attention to the fact that Emmett is in the way and was standing there before Gavin decided to do this. Gavin swung his feet out and I had…