Is Autism Speaks sending the wrong message?

I saw this post by Autism Speaks on Facebook today. They have started a James Durbin vote club on the Official Autism Speak blog. While I personally like the guy and think he's EXTREMELY talented, I'm concerned Autism Speaks may be sending the wrong message. Perhaps I'm looking at this wrong but I just think we have to VERY careful with a situation like this. By Autism Speaks creating a voting club for James Durbin and throwing their EXCLUSIVE support behind the ONLY Autistic contestant on American Idol, they may be sending the message that we should vote for him because he's Autistic. In my opinion that's a very dangerous and even insulting approach to take. I think many people could easily perceive this as a call to vote for…

10 Comments

Mason Allen Medlam

Hey everyone, if you get a minute (and even if you don't have a minute, make the time) PLEASE visit "Like" and "Share" the Mason Allen Medlam Facebook page. If there was EVER a cause to support this is it. Please help spread the word. I don't typically do things like this, that's how STRONGLY I believe in what they are doing. Here is a direct quote from their page: "On July 27, 2010 my five year old autistic son, Mason Medlam, wandered from our home and drowned in a neighbor's pond. He died two days later. This page is dedicated to raising autism awareness, wandering prevention, and wandering safety. We miss Mason more than can ever be expressed. We love you, Bubby."   -Lost and Tired

1 Comment

We have PROGRESS :)

Lizze and I have been working VERY hard with Emmett to give him a BASIC means of communication. Lizze has been working especially hard with ASL and we are starting to see progress. Some people may not see this as a big deal but many more will also understand just how BIG a deal this actually is. We are finally starting to see some basic language developing. THIS IS HUGE.   Edit: I'm laughing out of EXCITEMENT and NOT at his expense. [youtube]http://www.youtube.com/watch?v=VqeFLc0YjlY[/youtube]   -lost and tired

4 Comments

Autism Blogs Network

I created this page on Facebook in order to help Autism related bloggers, tweeters, website and Facebook page owners or anyone else trying to spread Autism Awareness. All you have to do is post your information on the wall. Include links and descriptions. This way others can connect with you and help you spread your message. It could also be a great way to find new readers and followers. I'm hoping this will help us all network and spread Autism Awareness. Click on the link to the Facebook page and plug your site :)   Autism Blogs Network     -lost and tired

0 Comments

Story time with Elliott

Not to be out done by Gavin, Elliott has been working REALLY hard for the last few days on his own story. He asked me if I could record it and post it like I did for Gavin. He's just so cute. He worked REALLY, REALLY hard on this and made me redo the video 3 times before he was happy with it.  He just kills me. But again what a great thing for an Autistic child to do. I am SO proud of him.  Please enjoy and leave your positive feedback.  Thanks   -lost and tired         [youtube]http://www.youtube.com/watch?v=2Pf8jiRDAYo[/youtube]

6 Comments

Autism, anticipation and meltdowns

After writing the Special needs parenting and the “tough decisions” this morning I was thinking. I know, scary, right? Well anyway, I was thinking Gavin doesn't do well with blood drawls or needles in general. Part of the way we have made it through those so far was that we didn't give a lot of time to anticipate what was going to happen. For kids with Autism anticipation is a horrible, torturous experience. It does nothing but induce anxiety for many kids on the spectrum. Anxiety is one a the MAJOR components or contributing factors to meltdowns. I foresee us having major problems with anticipation. Gavin will know that for the foreseeable future (or FOREVER as far as he's concerned) he will be getting at least one shot every week...FOREVER. This is actually very concerning for…

2 Comments

Special needs parenting and the “tough decisions”

Being a special needs parent is NEVER easy. Whether your child has Autism, another developmental disability or something as uncommon as schizoaffective disorder, life is challenging. We face things on a daily basis that most parent's would consider their worst nightmare. We do it out of pure love and devotion for our children. Sometimes this requires us to make decisions that many people will question and even criticize us for. Sometimes issues present themselves and have no clear cut "right" or "wrong" answer. Sometimes we are forced into a position that requires us to make choices that could have serious implications in our children's lives but at the same time have the very real potential to IMPROVE their lives as well. We have found ourselves in one of these situations with Gavin.…

13 Comments

We’re off to a great start…sigh

Been up since 5am. Emmett's got a fever of 104F and Gavin has already had a meltdown. Not the best way to start the day. Emmett will miss school again today. Oh and I think Lizze is getting sick as well. I'll have a few updates from yesterday later on today. I have some news on the Gavin medication front. Also an update on yesterdays trip to Akron. I was to exhausted after living yesterday to post it yesterday, if that makes sense....  Posted to WordPress via Autism Aware and midNIGHT ROM powered Epic 4G

0 Comments