Neurological Consult

In about 1 hour Lizze and I will be meeting with one of her neurologists to discuss the procedure required to break her current migraine (that has been raging for over 2 weeks) and treat the future ones. Neither the occipital nerve blocker or the headache infusion are pleasant procedures and run the chance of not working. I'll post more details and links about these 2 procedures later today. Thanks for your continued prayers and support. - Lost and Tired

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Frustration

Monday is here and already it's unpleasant. Lizze isn't feeling good and is having a really hard time getting up. This means I'll probably have to bring the kids with me to take Gavin to school. Emmett hasn't been doing well on short trips like this because he expects to get into the van and go somewhere. When I take him to the school and then drive home all he's going to to is scream because it wasn't long enough. Elliott is already super whiny and pitching a fit because he wants candy for breakfast. I'm still exhausted from yesterday and I have to get some work in so I can pay our insurance bill. Feeling quiet a bit of pressure right now and   the way the day is already going…

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Autism + Easter= Exhaustion

Today has been one of those days were nothing seems to go right and all my best efforts fall short. I used to love the holidays. I loved getting together with friends and family. Honestly, anymore, it's just easier to avoid them all together. The boys just don't handle them well and the fallout that occurs afterwards far out weighs the pleasure of a nice visit with family. Today was no exception. We decided to go to Easter dinner with my family. By the time we left to go Emmett was already back form Lizze's parents house. So he did actually accompany to dinner which was really nice. Typically the way it works for my family is if they plan dinner for say, 3pm then we will be eating around…

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Happy Easter 2011

We just got home after only a brief family visit that ended because Gavin was getting VERY anxious. Now we have 3 seriously overstimulated kids and 2 extremely exhausted parents.  Praying the kids go down without much struggle tonight. I hope to catch up on some posts I been working on and sneak in a few more episodes of Lost (just started season 4). Hope everyone had a really good holiday.. - Lost and Tired

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Guilt

Today is a bitter sweet. We will "actually" be going to a family get together today for the first time in quiet a while. I say bitter sweet because Emmett won't be with us. Last night Emmett spent the night at Lizze's parents house so we could have a desperately needed break. They are keeping him today and taking him to Easter dinner. Lizze, myself and the other 2 boys will be going to my family's for Easter dnner. We weren't going to go because we would just spend the entire time chasing Emmett around and Lizze can't physically do it. It would end up falling mostly on me and I could do that at home. People always tell us that they will help us if we come but it…

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I have a post being published next week.

"My Broken Heart: The bare handed man" will be published next week on The Thinking Person's Guide To Autism. You also find them on Facebook as well. I'm honored that they felt my story was worthy of sharing. I'll post the links when I get them. That's so much for helping me share my story.

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Special needs kids and medication management

Many special needs children are on medications for various behavioral or medical conditions. This really isn't any big secret. However, what many people don't know is how difficult it can be to manage it sometimes. In our case Gavin is on 8 or 9 different medications for several different problems. We have mood stabilizers, anti-anxiety, anti-psychotic, meds to help with the movement disorder and meds to help him sleep. He metabolizes medications EXTREMELY fast so they are constantly changing. I wrote in Special needs parenting and the "tough decisions" the other day about a MAJOR medication change on the horizon for Gavin. We are starting the medication called Clozapine.  This is a anti-psychotic medication and also the MOST TIGHTLY controlled medication in the entire United States.It requires weekly blood work in order to get the…

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Read more about the article How YOU could help a Special Needs Parent
Daddy and Emmett

How YOU could help a Special Needs Parent

As the rates of #Autism continues to skyrocket, the likely hood of you knowing someone that is a special needs parent is growing as well. Maybe you already know someone with a special needs child. Perhaps, a friend or family member.In this article, I hope to give you some simple ways that you can help the special needs parent in your life. Knowing what to say or do can be daunting for someone that doesn't have experience with special needs parenting. This is probably where many people, with the best of intentions, get scared off. Seeing what a special needs parent goes through can be a very overwhelming experience for anyone. It may even seem so dire that one might feel that they have nothing to offer, that could possible…

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