What this special needs parent wishes you knew…

I wish you knew what it was like to walk a mile in my shoes. I wish you knew the challenges I face raising a special needs family. I wish you knew that I need help even though I don't ask. I wish you knew how difficult and yet amazing my kids are. I wish you knew how a random phone call could make my day. I wish you knew how isolated and unimportant I feel. I wish you knew how tired I am. I wish you knew how much I hate being questioned, especially in front of my kids. I wish you knew how completely overwhelming life is. I wish you knew how much my kids miss you. I wish you knew how much I miss you. I wish…

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Autism Support Forums

I'm building a support forum for parents, family members, friends, relatives or anyone who's life has been touched by Autism. We all need a place to go where people just "get it". A safe place to vent frustrations without fear of being judged. We need a place where we can ask questions or seek advice from the people who are going through similar things. We are all in different places and maybe even on different roads. However, we are ALL on the same journey. We all experience the highs and lows of special needs parenting. We may not be doctors or therapists but we are experienced and in the trenches every day. We CAN help each other. We can share knowledge and experience. We can ALL learn something from one another. We…

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Change of plans…..

Well the kids are all gone for now and Lizze decided on the movie Thor. We got ready, into the van and drove off. As we were driving the ABS started locking up every time I tapped the brakes. It happened every time I tried to stop the van. So we had to turn around and limp back home. I think I can pull the fuse and disable the ABS but it's raining and Lizze already went to sleep. I suppose that everything happens for a reason but I was really hoping to give her some "normalcy". Guess that will be put on hold once again....  

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The blink of an eye: Autism and aggression

~Autism and aggression~ I have blogged many times about the injuries we deal with as a result of meltdowns and rages associated with Autism. Right now the main aggressor in the house is Emmett. Gavin is by far the most violent but as of late he only "attacks" himself. Emmett on the other hand typically goes after Lizze and Elliott. No one knows exactly why that is but there are schools of thought. It's most likely due to the frustration of not being able to effectively communicate. If that's true then why is it typically Lizze and Elliott that get "attacked"? Often times these "attacks" are completely unprovoked and seemingly come out of nowhere. Sometimes the injuries are pretty bad. Lizze gets cuts on her face and neck. Elliott gets…

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We are FINALLY getting out……

Thanks to both sets of grandparents for taking the boys for a bit tomorrow. I'm taking Lizze out to a movie for Mother's Day. I know it's not really anything special but I just want her to get a break from all the stress. I also just want to send some ALONE time with my best friend. She has yet to decide on a movie but I'm sure she'll figure that out. Lizze and I never get time to just be together and be away from the kids. Please don't get me wrong, I love my kids and would rather be with them then away from them. However, our lives are EXTREMELY stressful and sometimes it's important for Lizze and I to get away. We have been doing this for…

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Progression and regression: The ebb and flow of Autism

~Progression and regression: The ebb and flow of Autism~ Gavin is......driving me crazy. I know, short trip.....right? I don't think people understand just how completely overwhelming Autism can actually be. Even kids with Aspergers are very challenging. Gavin has a whole lot more going on then most kids so the "challenging" part of raising him is compounded. Lately Gavin has really been struggling at least at home. Apparently he's perfect at school.....don't get me started on that. Gavin's memory has become much like a slip'n slide. Thoughts, ideas and just about everything else he visually and verbally takes in just slips right back out never to be seen or heard from again. I'm acutely aware that this isn't his fault but I'm human and it really gets old after a while.…

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Amazing moments in Autism…..

~Autism and the "little things"~ What may seem like nothing significant to most people is in fact a great accomplishment for Emmett. I was playing the game, "I got your nose" with Emmett the other day. It was kinda funny but I didn't think anything of it. Today however, I realized that it was a pretty big deal and here's why. Emmett climbed up on the couch with me and reached over and "took my nose". He then said "I got your nose". Most people would say big deal he said "I got your nose". It's a HUGE deal because this is the first time in his entire life that he has strung 4 words together. It may not have been "I love you Daddy" or "Mommy, I love you"…

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