My 2 little sickies…

We just got back from dropping Gavin off at school. We even took Maggie along for the ride. Emmett really got a kick out of having Maggie in the van with him. I'm going to "try" to accomplish some things today. "Try" being the key word there. Emmett and Elliott are both settled in and watching Netflix. Yes, Emmett is eating his sucker but he got that for pooping in the potty. I figured I'd head that one off. So no, we don't usually feed the kids suckers for breakfast but we have to keep up the routine of using the potty and I'm by myself this week. So whatever it takes to make it through...right?

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Tough week ahead..

I'm in for a pretty tough week ahead. While Lizze is getting the help she needs for her migraine I'll be looking after the kids. So far Gavin is the only one not sick. Emmett has been is "rare form" lately and so I already know my hands will be full. My only hope is that this infusion works and Lizze will be able to come home and relieve me so I can rest up a bit. We had several appointments this week, all the kids current therapies, an appointment at Akron Children's and one at the Cleveland Clinic. We made the choice to reschedule those in order to ensure Lizze gets this procedure done. Sometimes we have to put oursleves first as means of putting the kids first. If…

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It’s an early start to a busy day

I got Lizze up this morning about 6:30am. Her mom was picking her up to take her to her infusion this morning. The kids are sick and so it worked out better this way. I wish I could be there with her but these guys need me home. Lizze will be hooked up to an IV for about 6 hours this morning. They will be pushing a combination of medications that we hope will finally break her 2 month old migraine. The process will repeat for 3 days and hopefully by the end of the 3rd day the migraine will be gone. I simply can't imagine what she must be going through. I deal with chronic pain as well but no where near the extent that she does. I truly…

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Waiting: Is it chicken pox?

We are at the Dr.H's office to find out whether or not this is chicken pox. As it turns out, Elliott was due for his 2nd chicken pox vaccine in March. However, because he has been sick, it keeps getting pushed back. So he most likely won't get it today either. So we have a return visit as soon as he gets better.

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Read more about the article Pills and Politics: My CNN interview
My CNN Interview

Pills and Politics: My CNN interview

Little people, lots of pills: Experts debate medicating kids by Madison Park Hey everyone. I wanted to share the story I was interviewed for by CNN. It's about medicating children and as many of you are aware, Gavin is a perfect example of children that NEED medication. While reading this it's VERY important to keep in mind that Gavin is an extreme case. MOST children will never need this amount of medication but some will. With Gavin, we have an army of top specialists for everything. Everyone works together for Gavin's best interest. It's also VERY important to understand that Gavin is medicated for his benefit and quality of life. While it does make life easier for everyone, Gavin's safety (as well his younger brothers) and quality is our paramount…

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OMG… That did not just happen..

Warning: This post is gross.. Emmett wasn't feeling good, as I had stated in earlier posts. He was sleeping with us tonight instead of his little bed on the other side of the room. Lizze was having a tough time sleeping so she was streaming Netflix on her phone and working on her blog. She had apparently, just given Emmett something for his fever and ran downstairs to fill his sippy with Gatorade. I was half out of it. Well...really..mostly out of it. Next thing I know I'm covered in everything Emmett had eaten today. That's right folks, he puked ALL over me. After giving him a bath and cleaning myself up, Lizze and I each have a couch with Emmett bouncing back and forth between. Did I say it's…

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The week ahead…..

The week ahead is going to be full of new challenges for us. Lizze has her infusion therapy on Tues, Wed and Thurs of this week. Haven't quite figured out how I'm going to juggle all of this on my own. Lizze will probably spend most of the week in bed, sleeping. Hopefully, this will finally break her 2 month old migraine. Elliott and Emmett are both sick and Gavin is definately struggling right now....so....I'm not sure how all that going to go. Gavin has a field trip on Thursday to the McKinley Museum and I may not be able to make it now with all Lizze has this week and the boys being sick. Emmett and the other boys all have appointments through out the week as well, so…

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A Loving Lampposts GIVEAWAY

LostandTired.com has partnered with Cinema Libre Studio to give away a FREE copy of the award winning film, Loving Lampposts: Living Autistic by Todd Drezner. Here is how we are going to play this game. I'm going to keep it VERY simple (for my benefit). All you need to do is leave a comment on this post. As EVERYONE will get ONE entry per comment. Comment as many times as you would like. I said I was keeping this simple....remember. The winner will be selected at random via Pick Giveaway Plugin for Wordpress. Also please feel free to "Like" my blog. The "Like" button is on the top right. This contest will run from the time this posts until Friday , May 27th @ 8pm. The winner will be announced in…

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