Summer, sensory, health and safety

So we have this little problem (well I think it's a problem anyway) with Gavin. You see it's 90f here in Ohio and we are all desperately trying to keep cool. Well, all of us but Gavin. Gavin is cold, at least that what he says. If we let him and we don't, but if we did, he would be sleeping with pants and a hoody. Not only that but he would be under his comforter, windows closed and no fan. We're torn here. On one hand we want him to be comfortable but on the other we need him safe and healthy. It's simply to hot for what he's "comfortable" with. Gavin struggles with regulatory issues so we can't rely on him adjusting things if he gets to hot…

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Balloon bed

Elliott wanted me to show everyone his "balloon bed". I promised him I would so here ya go. It actually looks kinda fun....or maybe I'm just a dork. Posted from WordPress for Android

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Creatively cool

It's almost 90f here and the humidity is through the roof. Trying to keeps these guys as cool as possible. So last night we tried this.Elliott really likes his "balloon bed", as he calls it. Whatever works I guess. The heat doesn't mix well with sensory issues so we have to sometimes be creative. Posted from WordPress for Android

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A big old fat honesty post

Gavin is a very popular topic on this blog. That is because it seems he always has something going on. I also need to vent as his behaviors and choices can be.......frustrating. Gavin is once again the topic of this post. I know I might sound cruel but I don't see the point in trying to sugar coat the truth. I love Gavin very much but that doesn't mean I'm not human. I get frustrated, overwhelmed, angry and exhausted just like everyone else. Please keep that in mind... Gavin is at a point or phase where he has become VERY unstable. By unstable I mean, easily aggjtated, unpredictable, scattered, intolerant, disconnected, confusing and increasingly more violent towards himself. All these things are not out of character for Gavin, however, the…

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Climb off your high horse already

Warning: I'm venting a bit here. I've had a really bad week and I'm sick and tired of being judged/corrected by people who are supposed to understand. I really don't understand why people can be so intolerant of another person's choice to refer to their own child as Autistic. I have been corrected many times by people who are offended by me referring to my own kids as being Autistic. Are we really that petty?    As a father to 3 Autistic boys, I'm sensitive to the words people use to describe them. I have called for the removal of the word "retard", so as not to be used to describe person's with special needs. However, I have noticed a growing, arrogant and judgmental trend within the community itself. There are people…

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Gavin update 5/29/2011

I heard from Lizze. Apparently they are sending him home. They say this is a chronic issue and not acute. That's all I got before we were disconnected. My question is, what now? What are we supposed to do as he continues to esculate? The last time he went because he was a threat to others now he's a threat to himself and they won't help us. Frustrating doesn't even begin to describe how I feel. - Lost and Tired Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

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Please say a prayer for Gavin

Gavin had a meltdown this morning resulting in self-injury. This was severe enough that we are taking him to Akron Children's Hospital for possible addmission as he has become a threat to himself. Please say a prayer for Gavin that he finds the help he needs to stop hurting himself. I wanted to give those without any experience an idea of what I mean by self-injury. I fully realize that many of you deal with much worse behavior in your life. However, as I always say, everyone's experience is relative and for us this is getting much worse. Plus we have the added concern of the younger two continuing to pick up on this behavior. I'll post more when I get a chance but I have the other two boys…

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Give it a name and charge it rent

Yesterday was a really LONG day. Lizze slept in till almost 11:30 am which was nice because she was dealing with insomnia during the procedure. Emmett came home in the earily afternoon and Lizze went to visit her aunt in the hospital. When she got back we were given a ride to my parents house by my dad and sister. The van is still in the shop not having ANY problems at all. I'm trying to keep Lizze's stress level down because I'm worried that stress has been responsible for the migraines of late. While we were at my parents house I borrowed my parents car so I could get the the store and get a few things we need. While at the store I got a text from Lizze…

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