Emmett leaves his mark in random places through out the day. Most often we overlook them because we are so used to these marks. However, on occasion something will stick out and catch our attention. Today was one of those days. I walked into the bathroom to turn off the light and was greeted by a tower of toilet paper, compliments of one Mr. Emmett John. This is his way of letting me know he was here. :-)
Have you ever seen anything like this before. This is how Gavin writes now. It never used to be like this but as of late this is a very common occurance and dominates the way he writes. I don't know if this something related to Autism but I think this may be more of a neurological issue. I getting more and more concerned about this whole neurological thing. Gavin starts out writing using most of the page but a few lines later he begins using less and less of the page until he's whittled it down to only one or two words on each line. I fear this is another emerging symptom pointing to some sort of a neurological disorder. Does anyone have experience with something like this? If so,…
I wanted to share a pretty major victory we had with Emmett the other day. It got drown out by Gavin's crisis. I don't want anything to take away from what Emmett has accomplished. So I thought I would share this with all of you now. So here it goes. The other day Emmett comes running into our room and shouting "ta da". When we look down we see he had put his own sock on all by himself. I asked him if he could go put the other one on? He said "yes Daddy". He ran downstairs and comes back with his shoe on. Then he went downstairs and came back up with the other sock and shoe on. This is really awesome because a few days ago he…
Childhood disintegrative disorder: New Discoveries and New Fears One week ago today we received a phone call from Gavin's pediatrician's office. They were calling because lab work had come back and there was a problem, rather two problems. Gavin apparently had low lgM and lgG. We didn't understand exactly what that meant but we were told to make an appointment with an immunologist. Lucky for us we already had one at Akron Children's Hospital, Dr. Nancy Wasserbauer, DO and so we called for an appointment. Dr. Nancy Wasserbauer, DO is absolutely fantastic and we couldn't ask for a better person to fill her role. To my surprise, we had an appointment within 4 days from the time of the call. I honestly was thinking Gavin was going to be allergic to something that was…
Welcome back. In this post I'm going to share a bit more about what Emmett does while at OT. This video shows Emmett using the Monkey Swing. While using this, Emmett works on alot of upper and lower body strength. She first bounces Emmett a few times. This is called crashing. Basically it helps Emmett get some of the impact type things that his body craves. As you can see, Emmett absolutely loves the Monkey Swing. It took a few weeks for him to warm up to this but he's very comfortable with it now. I'm quite proud of all he is accomplishing. I hope this helps you to have a little better understanding of some of the things that take place during an OT session. Keep in mind…
I thought I would lighten things up just a bit. So I decided I would allow you all to see one of Emmett's OT (occupational therapy) sessions. I think it's important that you see first hand what happens during an OT session. I hope this gives you more insight into the world of special need parenting. I also hope that this may help any new special needs parents out there that are exploring these types of therapies but might not know much about it. This will be a multi part article and there is to much video to do in just one post. This video shoe Emmett swinging on a tire swing. It helps his learn to balance and strengthens his arms. [youtube]http://www.youtube.com/watch?v=WXAdYhcj8Eg[/youtube]
I wanted to take a second and thank everyone for all the love and support. This is a very difficult time and it really does help to see all the kind words. I appreciate all of you. Thank you again. Please have a good night.... - Lost and Tired Post by Wordpress for Android via Nexus S 4G without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)
I'm going to keep this pretty short as we have our hands full today. When I can, I'll do a more detailed post but for right now this is all I'm capable of. We met with the Immunologist this morning at Akron Children's Hospital. If you recall we were referred there when it was discovered that Gavin's lgM and lgG were low. We thought that the our biggest problem was going to be scratch testing. We couldn't have been more off target if we tried... We didn't understand what low meant. As it turns out Gavin lgM and lgG are extremely low. They are so low in fact that he will at least need monthly infusions going forward or we can put him on a pump and at home at…