We have arrived at the Cleveland Clinic and managed to navigate the maze of hallways and corridors to find where we were supposed to be.  This is a very important appointment because these doctors are pretty much the top of the food chain in the psychiatric field.  I imagine this meeting going on for a few hours at minimum.  We had a great deal of history to get through... - Lost and Tired Posted by Wordpress for Android via Tegra 2 powered Motorola Photon 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day…

I am being pulled in way to many different directions. Each direction is important but their is only so much of me to go around. This week has taken it's toll and we still have aren't done yet. Gavin has to be to the Cleveland Clinic in a few hours. I have no idea how long this is going to take either. All I know is that it's very important that we be there today as we have to figure out what is going on with Gavin. Contrary to what some people assume,  I don't want preferential treatment.  I simply want people to understand why things are the way they are.  We aren't irresponsible,  we are simply buried and cannot keep up with everything.  Whether it's the bills,  house work, …

Emmett is absolutely miserable. He's in a great deal of pain and is refusing to take his pain meds. This is going to be the longest night ever. I hope Emmett gets some sleep as he could really us it. - Lost and Tired Posted by Wordpress for Android via Tegra 2 powered Motorola Photon 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

We have finally arrived home.  Getting discharged took much longer the expected.  Emmett is quite happy to be home and so is mommy.  They going to go nap now and hopefully get some rest.  Emmett's moving around just fine.  The big hangup and this will be a BIG hangup,  is that he is basically on a liquid diet for 2 weeks.  I,  personally,  didn't realize the degree to which his already restricted diet would be. I'll have a post about that later. Anyway,  we have arrived home,  safe and sound.  Thank you all so much for your thoughts,  prayers and support. I intend to document how this surgery has helped Emmett with PFAPA.  That way of there is anyone out there considering the same thing,  you'll at least have an…

Emmett is going to be released very soon. He's been eating a ton of jello,  which is mostly water,  so he's getting plenty of fluids.  He's gonna be uncomfortable for another week or so but he's physically recovering and that's the important part. I just wanted to thank everyone for all the support and prayers. - Lost and Tired Posted by Wordpress for Android via Tegra 2 powered Motorola Photon 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

Everything was going well.  Emmett was doing everything he needed to in order to come home in the morning and then he stopped drinking. He's on IV fluids anyway but they like to see hydrating on his own prior to release.  Hopefully he will feel better in the morning and get released on time so we can bring him home.  If he needs to stay then he stays.  I mean,  we'll do whatevers best for him. It would just be nice to being him home in the morning as we had planned... - Lost and Tired Posted by Wordpress for Android via Tegra 2 powered Motorola Photon 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of…

I have been working on one of my little movies I make with videos and pictures from the past few years. However, it's extremely time consuming and time is something that I don't seem to have enough of anymore.  I had this all planned out and I most of the video cut and edited but I just can't seem to finish it. So I thought I would do this instead. I heard this some by Rascal Flatts and it was one of those songs that simply says what I couldn't find the words for. This song I think says what all of us as special needs parents feel for our children. I don't think I could have worded it any better and it always brings tears to my eyes when…

Lizze and I had barely finished our lunch/breakfast and Dr.  Milo was out to see us.  Emmett's surgery went very well and without the hitch that we are so used to accompanying everything in our lives. We are still waiting to go back and see him...  They will call us as soon as he wakes up. While Emmett handles anesthesia very well,  he doesn't wake up happy.  So he will likely be difficult to console and rightfully so. I am soooo grateful that he did so well.  Thanks for all the prayers and support.  One major mountain overcome this week and only 2 more left to go before the weekend. - Lost and Tired Posted by Wordpress for Android via Tegra 2 powered Motorola Photon 4G (provided to me at…