Emmett and Elliott are both sick,  either again or still...not sure which. Elliott has developed the cough that Emmett has had.  Emmett's cough has gotten a little worse. Lizze had an appointment with the neurologist,  who then sent her to another unplanned appointment. My job this morning was taking care of my little sickies.  Despite the battles this morning,  they finally settled into some quite time on the couch using their Android4Autism devices. Elliott actually prefers this to his DSi anymore. It's the one thing they agreed on this morning. Well they also agreed on watching Sid the science kid.  I'll take what I can get..  Little victories.  Plus they are so adorable.... ;-)   I want to thank Scotty Brown from Android Activist for catching the typo. Apparently when…

I'm sitting with Elliott sleeping next to me on the couch (nightmares) and feeling guilty. I hate dead time because all I do is think and analyze the things that have recently occurred.  Tonight is one of those nights. Lizze goes to bed very early everyday because she can't physically go on. So I spend most nights alone with my thoughts,  writing.  However, sometimes I think a bit to much and doesn't always end well. Tonight is one of those nights where I feel incredibly guilty.  I feel guilty for not having more patience with Gavin. He just talks nonstop and constantly repeats himself and after awhile it gets to me. He tries so hard and deserves better from me.  All I can say is that I'm human and can only…

Something I never shared with all of you is that the Goo Goo Dolls are my all time favorite band. John Rzeznik is a fantastic singer and musician. So the other day I stumbled upon this and I wanted to share. I think this is absolutely amazing. I have no idea why it only has 500 views but I hope to change that. I think this is an amazing tribute to Autism..... The words are incredible.....   Check it out and let me know what you think. I get goose bumps...... [youtube width="320" height="240"]http://www.youtube.com/watch?v=LTdWaB9yH_U[/youtube]                                                                        "I'm Still Here" I am…

So Emmett has devised a cunning new way to keep me from leaving the house without him in tow. He runs up and makes me stop so that he can stand with both feet on my foot.  This is supposed to stop me from being able to move,  at least without taking him with me.  He's just so stinkin' adorable.  - Lost and Tired Posted by Wordpress for Android via Tegra 2 powered Motorola Photon 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)

I have been documenting our journey with Gavin. This journey has recently taken a dramatic turn towards the more complicated. For those of you that are new to this blog and subsequently our story, and here is the cliff notes version. Gavin was diagnosed with Aspergers in 2005. However, since then, the he has experienced continual regression. Its been a slower process but we have reached a point where it's pretty obvious something is wrong. About 2 months ago we discovered that Gavin had basically no immune system and now needs monthly infusions in order to keep from getting sick. We also found out that he has lost his reflexes as well. We have been everywhere in search of help, including the Cleveland Clinic and Akron Children's Hospital. However, despite…

So I went up to the bathroom today to clean it. I noticed that the previously, almost empty bottle of hand sanitizer was full. Upon closer examination, I realized what had happened. Emmett in is never ending quest to keep everything full, discovered the hand sanitizer was almost empty. He took it upon himself to refill the bottle so that it was no longer empty. He actually umscrewed the lid and refilled the bottle without saying anything to anyone and without making a mess. Of course, he filled it with water, but still. I love finding these little surprises because they always make me smile. - Lost and Tired Posted by Wordpress for Android via Tegra 2 powered Motorola Photon 4G (provided to me at no charge by Sprint) without…

Elliott had nightmares once again last night. This meant that he was up very late because he was afraid to go back to sleep. The equates once again to no sleep for the daddy. Gavin is talking nonstop and continuing to tippy toe dance on what's left of my last nerve. I don't know how much more I can take.. I'm really trying to be patient and listen to everything he has to say but at this point it's like nails on a chalkboard to me. I know he can't help it anymore than I can help how I feel about it. Emmett seems to be getting worse instead of better and we will likely be back to Akron Children's Hospital today or tomorrow at the latest for an evaluation...…