Gavin has his first birthday party

Gavin will be going to his very first friends birthday party this Friday.  This is really the first year that his behavior has been good enough to allow for something like this.  In the past he was far to volatile and was very prone to violence.  It was safer for him and everyone else to just avoid these situations. However,  Gavin has made some major behavioral progress this year and we have decided he's ready for this new step.  Needless to say we are very proud of him and excited that he will be able to do this.  He will be going bowling with his friends from school.  I'm sure who's more excited about this,  me or Gavin. - Lost and Tired Posted by Wordpress for Android via Samsungs Epic…

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Please make it stop

So Emmett was back in school today.  However,  we were reminded why we don't want him in Canton,  City schools...more on that later. All was good with the world.  My amazing wife let me sleep in until 10:30am this morning.  However,  Emmett came home from school and is complaining of his mouth hurting.  He appears to be getting the mouth full of cold sores....again. He's in a great deal of discomfort but we can't give him the prednisone until we can confirm the sores are present and wouldn't you know it but Emmett won't let us look.... We were advised to get in contact with the state and report the school.  At this point we are seriously thinking about home schooling him until we get him a better school.  He's…

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Scrunchy Nose Smile

There are quite a few things in my life as a special needs parent that are, stressful,  demoralizing, frustrating,  heartbreaking and overwhelming.  Many times these things seem to collect and weigh pretty heavy on me.  I also hit periods where I wonder if anything I do is really going to make a difference.  Then there are the times like today,  where nothing seemed to go right.  However,  sometimes just sometimes,  the stars align and you see things in a different light.  Today was one of those days for me.  Nothing went right this morning but this afternoon my 2 oldest boys had perfect days at school today.  While waiting for them be dismissed,  Emmett and I were goofing around.  I got to see his scrunchy nose smile.  I even got…

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Daddy’s down

Well,  today is most definitely not going as planned.  We never made it to the appointment in Wooster because now Daddy is under the weather.. Lizze couldn't take him because she's got a wicked migraine.  She can drive to and from school but this would have been about an hour one way and that would have simply been to much for her.  Under the weather doesn't have to mean unproductive though.  I managed to take care of some pending business related insurance matters and that is now checked off the list. Lizze is napping with our littlest sickness,  Mr.  Emmett John. Emmett has the tummy bug that is going around the school.  He's back one day and catches something else and that one day was only 2 hours.... Sigh Not…

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Short lived

Well,  everyone making it back to school at the same time yesterday was major victory.  However,  this victory was short lived. Emmett is home and sick once again.  Gavin is home as well but for a very different reason. We have an appointment at the Wooster campus of the Cleveland Clinic today for Gavin. It's a follow up with his main neurologist and the timing is really good because we have lots of new information to give him. Hopefully,  we will leave with some answers.  Just for once it would be nice to actually walk away with answers instead of questions. - Lost and Tired Posted by Wordpress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools…

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Remembering what’s most important

A friend of mine shared this personal story with me and I thought it really was amazing. She gave me permission to share this with all of you here. We all have those defeated days. Those days were we just feel so frustrated, overwhelmed, heartbroken and exhausted. It's these times that can remind us of what really matters in life. Jillian had one of these experiences recently and I thought this was really a great story to share. This is one of my most favorite things I have read in a while. I can totally relate to how she was feeling as I have been there myself. Jillian is thinking about starting a blog to share their story and I think that would be a really good idea. I also say…

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Separated Elbow

I mentioned that Emmett was in the ER again last night but never elaborated... Emmett and I have this thing.  We play a game where we take turns getting each other's nose,  ears ect..  I used this as a fun way for him to learn the parts of the body.  I figured that this could help him when something hurts in the sense that he could tell us where he hurts now. So the other boys have gotten in on this and of course it's gotten a bit out of hand.  Anyway,  Emmett was sneaking up behind me so he could get my butt. One of the things his brothers have added to the game.  As he was about to do this I turned around and grabbed his hands.  I…

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Autism, Health Issues and Missed School

Good morning everyone. I trust or at least hope this Monday finds you all doing well. Something I have been wanting to talk about and get a better feel for was how you all deal with this particular issue. Now this may not apply to everyone but I would think at least someone out there is dealing with something similar, so I thought it would be helpful to broach the subject. As the title suggests, this post is about Autism. Health Issues and Missed School. To be more specific, I want to discuss how to juggle these often conflicting issues and get an idea about how others are coping with this. Does that make sense? Recently, Emmett began it guess what is considered pre-preschool. Basically, he's to young for preschool…

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