Emmett and Elliott decided it would be fun to flush toilet paper rolls down the toilet. Rather shove them down the toilet. Now nothing will flush. I have plundged and snake that freakin' toilet all morning but it's still a no go. My hope is that the cardboard will eventually break down enough to flush it down or plunge it out. Until then...well..not gonna be a fun day. All of this, and it isn't even 8am yet. - Lost and Tired Posted by Wordpress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-) Please Vote for Lost and Tired (just click the link)…

I'm hoping this makes sense. We had a very close call tonight and right now I'm still shaking... I'm hoping that by writing this down I can start to relax. So if this seems kinda scattered, understand that is's all I can do at this point. We were coming home from taking Emmett to the doctors because he has been screaming all day long and ended up missing therapy today because we couldn't get him dressed.. He was in a tremendous amount of pain so we wanted to make sure there was nothing else going on. Turns out he's cutting 4 teeth and that's partly why he's been such a grump. Anyway, Elliott and Gavin were with Lizze's mom, out looking for costumes. As we were turning down one of…

Gavin begins PT (Physical Therapy) this afternoon. He desperately needs it. He seems to be loosing more and more muscle control and hopefully, he can slow the progression of this process by working on some of these areas with the PT. Say a prayer that this goes well. I'm going to try to document as much as possible, so I can share with you what happens during a PT session.

This morning was a relatively good morning. Elliott was feeling better and Emmett seemed to be feeling OK. Lizze was not doing well so she spent most of the day in bed. We were supposed to go to my parents today in order to celebrate my dads birthday. We had canceled due to everyone not feeling good. However, since everyone was feeling better, I took the boys and let Lizze sleep. However, shortly after arriving, Elliott told my mom that he still wasn't feeling well but he was afraid if he had told me that he wouldn't have been able to go. He was right, I would have stayed home and let someone come to pick Gavin and Emmett up. I had to take Elliott home because he was still…

As many of you know, Gavin is dealing with something quite profound. No one has been able to explain it outside of saying it's some type of degenerative neurological disorder. He has been losing muscle control. Since January, he has lost his reflexes. Within the past month it was discovered that Gavin can't move his tongue in an upward direction. This it to blame for part of the speech regression. It has been recommended that he has a swallow study done to make sure he is having issues swallowing. However, recently, Gavin's grade are starting to fall, quite significantly. This is getting to become a much more serious problem. Our next step is to see a very special doctor at Akron Children's Hospital. If you have ever watched the show…

Sometimes I just wish everything would come to a screeching hault. I get so tired of all the commotion, fighting, screaming and whining. I truly love my family but sometimes I just need a break. Do any of you ever feel this way? I think it's only human to feel this way, however, that doesn't take the guilt away. Special needs parenting can be such a double edged sword at times. It can be extremely frustrating at times. Not only do you feel the frustration but also guilt for being frustrated with your child in the first place. I mean, afterall, it's not their fault. Sometimes it just feels like you can't win for tying. I'm having one of those days myself. The only person in the whole house that…

Remember the old Calgon commercials where the person would be stressed out and simply have to say Calgon, take me away. That was all it took for their situation to improve.  I tried that and it doesn't work so I'm looking for something else..to take me away. This has been the longest day ever and I could use the relief. We heard from the doctor and rapid strep test was negative but we need another 48hrs to know for sure.  Elliott is so miserable that he can't sleep.  Emmett started his first round of prednisone this afternoon and hopefully that will break this flare up. Everyone is miserable and either,  crying, screaming, fighting or whining and it's getting to be quite overwhelming.  Lizze is not having a good day either…