Today’s Victory: How we recovered from an absolutely disastrous day

Nothing about today went as planned. It was incredibly stressful and frustrating because it was just one thing after another. Today was the day we were supposed to divide and conquer because Lizze needed to be at the Cleveland Clinic while Elliott needed to be at Akron Children's Hospital before we'd be back. We had worked things out and made arrangements for Lizze's mom to take Elliott to Akron while I drove Lizze to Cleveland. Unfortunately, Lizze woke up very early this morning and was not feeling well at all. There was no way she'd be able to make the 90-minute drive to Cleveland. It just wasn't going to work. She was able to reschedule, and while it threw things off a little bit, it did free me up to…

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Today’s Victory: We were able to pay for my wife’s medication

Today's victory is a bit unique but also something I think people can relate to in a general sense. Money is very tight this month and we're really struggling. We have a great many medical issues that we're contending with and most of them require medication. We're very lucky that most of our medications are covered but there's one in particular that isn't and it's pretty expensive. As many of you know, Lizze is dealing with severe chronic pain from fibromyalgia, Ehulers Danlos, and chronic daily migraines. She's also being treated for PTSD and has pretty severe social anxiety issues. For the last decade, we've tried every medication that was appropriate for her situation, as well as any therapies. Unfortunately, nothing has ever really helped. Her migraines haven't responded to…

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OMG it’s like pulling teeth

I got my walk in bright and early, after a semi-decent nights sleep. I took some ZzzQuil before bed, and sometimes it takes forever to shake off in the morning. We have to make a trip to the dispensary this afternoon. It's an extremely expensive trip but it's a necessary one. Lizze hasn't been here in a couple of weeks because she uses it sparingly. While it is costly, it makes such a difference in her life. This is a must. Later on this afternoon, we have therapy with the kids. We also need to get Gavin's Clozapine refill today and that's seemingly like pulling teeth at this point. Every fucking week it's nightmare trying to get this prescription refilled. There's so much red tape that in every single year…

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Today’s Victory: It looks like physical therapy is a go

There are many things that happen in the course of the day for an Autism or Special Needs family. Frankly, things move so fast that it can be very difficult to keep up. Speaking for myself, it feels like I spend most of my time, running around putting out fires. It's even more difficult when the other parent is chronically ill because life becomes infinitely more complicated in pretty much every way imaginable. Lizze is dealing with lots of health issues; most impactful are those related to her chronic pain. She's made tremendous progress over the years and there's hope that things will continue to improve. The reality is that living with things like Ehlers Danlos, fibromyalgia and chronic migraines can't possibly be understood unless you're loving it first hand.…

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Apparently purple is for girls?

Gavin's blood work went great and even though they didn't have the color of wrap normally gets, he accepted purple. I think he views purple as a girls color and therefore accepting it is a pretty big step for Gavin. We've tried to explain that guys and girls can wear whatever colors they like. He's very simplistic in his views and that's not likely to change. 🙂👍 I ended up walking in the rain this morning after I finished with Gavin. It was actually significantly colder today than it was yesterday. We've been dealing with 110° F temps recently, and today it was in the low 60's and pouring down rain. A little bit ago, Emmett and I got home from picking up his birthday present. It took him forever…

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In true Monday fashion, my plans have fallen apart

I woke up this morning with every intention of going walking but for the third day in a row, mother nature has had other plans. The temps have dramatically cooled but now it's raining/storming and it will be for most of the morning. I do plan on trying again throughout the day, as there are breaks in the weather. Instead of going back to sleep, I decided to catch Gavin before he took his morning meds and get his blood work done. He was stressing out over it last night, and I figured he'd appreciate getting it done right away so he could take his meds, as well as his morning nap. I'm writing this as I sit in the parking lot and wait for Gavin to have his blood…

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Today’s Victory: Spending Time Together

It's been a rough day, but that's nothing new. On days like today, it's not always easy to focus on the positive. Having said that, I'm really pushing myself to do this on a daily basis because it's important. There a quite a few things that caused a shit-ton of stress and anxiety, but there's always something that can be viewed as a victory. Sometimes I need to look harder than others but there's always something. Today's victory is going to go to Mr. Gavin. He's really struggling with life right now, and so I feel it's very important not to overlook the positives when they come around. This particular victory might not seem like much on the surface but if you're an Autism parent, I suspect you'll understand. I've…

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Sometimes we just need to vent

Lizze and I had some tense moments after the kids left. I think that we are both so overwhelmed by everything going on around us, and hiding that stress from the kids takes a toll. When they leave, we end up purging. Lizze and I don't fight per se, but we both vent about everything we've had penned up inside. Once the kids leave, we can more freely talk about the things that need to be talked about. There's nowhere in this house that allows Lizze and I to have a private conversation, without everyone else overhearing. Our house is pretty small and even talking in a very low voice, is loud enough to carry up the stairs to the second floor. There are many things that we need to…

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