Despite how well yesterday's 4th antibody infusion went,  we did get some troubling news of sorts. Gavin's sinus problems,  should be getting better in light of the infusions.  However,  despite these infusions,  Gavin's chronic sinusitis is not getting better.  We have ever been referred back to the ENT,  once again. Gavin's immunologist thinks he may need his tonsils and androids removed.  She is referring everything to Dr. Milo,  Gavin and Emmett's ENT,  at Akron Children's Hospital.  I don't know if he will need any type of surgery to correct his damaged sinus cavities but I do know that he cannot breathe through his nose.  Hopefully,  if surgery is needed,  it will make a marked improvement in Gavin's ability to breathe.  Lizze scheduled the appointment yesterday,  but I don't know for…

We here at the Lost and Tired house have had an ongoing issue for years now.  Where do all the kids socks go? More specifically,  where do Gavin’s socks go? Recently,  I went through the entire house and collected all the stray socks.  I found total of 25 pairs of Gavin's socks. That's right,  25 freakin' pairs of socks,  for Gavin alone.  You would not believe the places I found socks.  You would think that Emmett,  the little boy who throws his clothes anywhere he can to keep from having to wear them,  would be missing socks but no,  just Gavin. Once again,  Gavin is out of socks and a search of the house has turned nothing up.  What the heck does he do with his socks?  If you were…

I thought I would take a minute and share some of the things I have learned along the way as far as speaking to a child with Autism. When speaking to an Autistic child you need to keep something in mind. Autistic children typically see the world in black and white and don't see the grey areas at all. This can making communicating to an Autistic child difficult at times. It's very important to learn and understand how to talk to an Autistic child because doing so incorrectly can lead to anxiety, and subsequently meltdowns. Autistic children are typically very literal minded. This means they will most likely take what you say at face value. You should avoid words  or phrases like maybe, sometimes, next time, not now or later on.…

Well, we finished up a few hours ago.  It went pretty well.  It is however,  becoming more obvious that Gavin is regressing.  He's behaving more and more like a 3 or 4 year old would. I had to kind of keep reminding him how to behave and to be polite.  He was very demanding and down right rude to the nurse at times.  These things would be expected from a much younger child.  When comes from someone as old as Gavin,  it comes across in a different way.  The staff was very understanding but I still want Gavin to treat people with respect.  - Lost and Tired Posted by Wordpress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper…

When it's time to go back to the room where the infusions will take place,  there are a few things that have to be done before we get started. This preparation takes about an hour or so.  It involves numbing the area where the IV will be placed and meditating him so that he doesn't,  hopefully,  get sick from receiving the donor antibodies. Once all this is done,  we just have to wait until it's time for the infusion to begin.  The wait time is broken up by the PS2 for Gavin,  and the typing of this blog post for me. :-) - Lost and Tired Posted by Wordpress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing…

The IV has been placed.  Also,  we arranged for Akron Children's Hospital to draw the blood for Gavin's weekly blood draw.  This way he doesn't need to traumatized a second time today. The IVIG Infusion will take a few hours to finish.  Gavin will be having pancakes and sausage for lunch.  I, one the other hand,  am fasting for my cholesterol check I have to have done on the way home today.  Lizze is home sick with Mr. Emmett John today.  I'm so tired and I'm getting pretty darn hungry.  I'm anxious to see how far my cholesterol has come down.  While I haven't been walking,  I have been eating better.  My last check had me down to about 160 from 210. :-) - Lost and Tired Posted by Wordpress…

We have arrived at Akron Children's Hospital a little early.  We had to arrive early because we were out of supplies to prepare him at home. I just signed him in and we are waiting..... - Lost and Tired Posted by Wordpress for Android via Samsungs Epic Touch 4G (provided to me at no charge by Sprint) without the use of proper editing tools and disadvantages of a bastardized version of auto-correct. So please forgive the spelling ;-) Please Vote for Lost and Tired (just click the link) and help me spread Autism Awareness. Everyone can Vote once a day :)