Gavin is done with his 5th antibody infusion. I actually thought this would be his last one for the year but we will be back on December 30 for number 6. He did really well, all things considered. I promised him ice cream if he did well, so I will have to pony up. :-)
While we were waiting for the IV infusion to complete, we had a surprise visitor. We got to meet Rosie the Chocolate Lab and her owner, Don. They come through oncology every Friday to visit with the kids and help to cheer them up. It was a really nice visit and Gavin got to give Rosie a treat. Then Rosie accidentally got tangled up in the IV line, totally freaking Gavin out. It was a complete accident and no harm was done. It was really nice to have this little visit to help break up the time. :-)
Gavin has begun his IVIG infusion. This will take several hours and Gavin is manic so he's talking nonstop right now. This is going to be a very long morning/afternoon. After the infusion is done he with receive a small flush of about 250cc's of normal saline. Then he will be disconnected and released into the wild. :-) This would be relatively relaxing if it wasn't for his incessant talking. I have my headphones on and am listening to music and catching up on a few shows. However, every 30 seconds, he's asking be some completely random question and repeats itself over and over until I respond. Really? I mean he has the PS3 to pass the time and all I want to do is read my book, watch the…
Gavin is now all prepped and ready to go. The nurse is about ready to place the IV as his meds have kicked in by now. She will also draw Gavin's blood so he won't need to have a second needle stick today for his now biweekly bloodwork for his Clozapine refills. That just means less trauma for Gavin and less drama for everyone involved.
We, meaning Gavin and I have arrived once again at Akron Children's Hospital for the 5th antibody infusion. We arrived pretty early and they got us back right away. Now we are just waiting to get started. We have quite a few hours ahead of us....
I swear to God, that Gavin has to be the most destructive kid in the world when it comes to his clothes. I mean, honesty, his clothes never stand a chance. We are basically sentencing his clothes to death every time we buy them for him. We were getting him dressed for his infusion this morning and handed him his brand new pair of school pants. However, as we handed them off, we noticed all of what you see in the picture. He claims it's from jello but unless he was rolling around in a kiddie pool, filled with at least 2 different colors/flavors of jello, I don't see how this was possible. Gavin is the only person in our family that is ever missing clothes. I have absolutely no…
Elliott woke up this morning with a rash. Not sure what it is but it's enough that he has to stay home from school. When he was examined by the immunologist yesterday, she did mention that it looks like he is fighting something off. Perhaps this is part of that, whatever that is. Not that him being sick is a good thing, but the timing does actually work out to our benefit. Gavin's infusion is later in the morning today. That means that we likely wouldn't be home in time to get Elliott from school anyway. That is the silver lining in "Wake up with a rash Friday". Hope all goes well for everyone out there today. I'll be thinking about all of you today. :-)
Today was crazy busy. I was up all night with Elliott only to be up in time to make it. To Akron Children's Hospital before 8am. After 2 successful appointments, we made our way home. I had to pick up some prescriptions get a few other things done. I made a few return calls and got a few posts done for the blog. I got the kids fed, medicated and ready for bed. Elliott and I finished his make up work and as I finished a load of laundry. Now I'm gonna try to get some sleep because I have another full day at Akron Children's Hospital in the morning with Gavin's 5th antibody infusion. It's gonna be a very, very long day. :-(