I’m not sure where to even begin

The boys will be back soon and I'm feeling a good bit overwhelmed at the moment. I wanted to get the living room gutted before they got home and put up my late grandmother's bookshelves next to the TV. I got the shelves in place but there's a ton of shit I need to go through. I thought the extra storage space would be helpful and we can begin making the house our own once again. Unfortunately, I'm getting overwhelmed and I'm running out of time to get this done because the boys will be home soon. There's not a great deal they can actually help me with at this point cause I need to go through everything and decide what to keep. While I was cleaning off one of…

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I’m very much on edge right now

My first night without the kids was pretty rough. I'm almost never away from them and having the house completely devoid of even their fighting is unsettling. I miss them doing the things that drive me crazy. Is that weird? I had zero plans for the evening. I had a pizza in the freezer and Netflix on TV. It's weird because I've lost all interest in watching anything that I used to watch before my life turned upside-down. I have a DVR full of shows that I want nothing to do with anymore. Maybe that's normal, considering. Anyway, before my evening could even get started, I got a call that my sister needed help and I spent most of the evening helping her. I didn't get home until after 10PM…

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My kids have their first visitation today and this is killing me

Today is a really going to be difficult for me because the kids have their first visit with their mom since she moved out. Actually, they already left for their first visit. Don't get me wrong, I'm so glad that they can visit her because it's so important to have both parents in their lives. I truly, firmly believe that. At the very same time, I'm sitting in an empty, broken home and needing to stop my brain from trying to figure out what the fuck is happening. It sucks and I really wish things were different. I'm going to use the time to get some things done around the house and try to keep busy. The more I do that, the less time I have to think about my…

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It sucks but we’re doing okay-ish

Last night, we sat down with the boys and their therapist to tell them what was going on. They already knew that mommy had moved out but they hadn't heard from her what was going on or been able to ask questions. Doing this in the presence of their therapist made sure that they had all the support they needed. All things considered, it went well. The kids are kind of a mixed bag at the moment. It's still very new to them and it's really important that we get visits started ASAP. They're going to spend the night tomorrow and as far as I know, they're all excited about it. That's a good thing. 😊 We had a decent day today and I'm grateful for that. I kept pretty…

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Working to become the leader my family needs me to be

I know I'm so far behind and I'm not keeping up with this blog. It's never my intention to back away because it's an important part of helping me manage the stress in my life. Since the beginning, writing about our life, specifically from my perspective, has been therapeutic for me. I was able to write what I was feeling and then walk away, without having to carry the weight anymore. It's been largely successful and I'm so grateful that it also helps provide comfort to other families going through similar situations. There's a great deal going on in my life right now and writing is becoming more difficult for me on a number of levels. I'm trying to force myself to get back into the habit of writing a…

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Gavin did something pretty amazing tonight

I wanted to touch base and let you know that things are going pretty good at the moment. Gavin's appointment with immunology went well and he's had a pretty good day. In fact, Gavin's had an awesome day. The kids had therapy tonight and while we were there, we were trying to work through a disagreement with Elliott. It got a bit heated and Elliott expressed himself in a way that wasn't very respectful. We know he was frustrated but we still need to be respectful. It's a little bit harder for him but we just need to keep working on it. Elliott's rough time went on for about half an hour before Gavin, who was on the other side of the room with Emmett, just sorta snapped. He stood…

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#Autism parenting is all about progress not perfection

It's not a huge surprise that Gavin's appointment with his immunologist went well. These appointments rarely go poorly because he's monitored so closely on a weekly basis. Gavin sees his immunologist because he has Common Variable Immunodeficiency or CVID, which put simply, means he lives with a severely compromised immune system. This is a life threatening condition that has no cure. In order to stay healthy, he requires IVIG infusions twice a week and we do those at home. Today's appointment is a follow up. We have to physically check in about every six months and have special labs run. That assumes there aren't any problems between appointment. Anyway, everything went pretty well and Gavin was even able to answer most of the questions on his own. I only spoke…

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