Something that I have learned over the past 11 years of special needs parenting is that moving forward is sometimes, easier said than done. This is one of the reason why it's so important that we not lose sight of the fact that baby steps will still get us to our destination. For the Lost and Tired family,  moving forward has never been easy.  Something always seems to come up and we have to shift priorities,  so it's difficult to really ever make progress or move forward. One of the best lessons I have learned is that every little victory,  no matter how small,  is just that.....a victory. Having said that,  we have gain one of those victories. Dr.  Reynolds has agreed to see Elliott for his anxiety.  His first…

As I'm sure you are aware of,  Autism can be very challenging,  for both the person touched by it and their family.  But what happens when the person affected by Autism has other health/mental health problems as well?  This is commonly known as a comorbidity. In the case of the Lost and Tired family,  our 3 boys with Autism have other health/mental health issues.  Some of these additional challenges are minor in nature,  while others are deemed much more serious and tend to interfere with everyday life. Some of these issues facing the Lost and Tired family are,  ADHD,  OCD, PICA, Primary Immunodeficiency, PFAPA (a rare fever disorder),  Schizoaffective disorder, asthma, anxiety, PTSD and an as of yet,  undiagnosed degenerative neurological disorder. I say the Lost and Tired family is…

Elliott is a sweetheart of a child.  Having said that,  he is extremely anxious and we'll,  basically dislikes germs. Keep in mind that both of those descriptions should be considered understatements. Lizze and I were cleaning up after dinner and getting meds ready when Elliott comes running downstairs in a panic. I ran upstairs to find out what had happened and this is what I found. Personally,  I think this is hilarious and such a typical guy thing to do. Wait a second,  that was a typical guy thing,  wasn't it.  Alright Emmett.  However,  Elliott was really upset for two reasons.  One,  his DSi could fall and take a rather unpleasant bath.  Two,  even if it didn't fall into the toilet,  it does make anything better because now it has Emmett’s…

Today I found saying something that I never thought I would say. That gave me the idea to start doing posts like this. I think it could be humorous if we all shared our experiences with this.  I'll get us started.  Today I said "Emmett John,  stop chewing on the lamp". Never in my life did I think those words would ever come out of my mouth. Your turn :-) Posted from WordPress for Android

Today's Victory is brought to you by Mr.  Emmett John. I don't think this needs any explanation. Go Emmett John.........  :-) Posted from WordPress for Android

Sometimes it's easy to get swept up by the raging tides and forget about just how beautiful the ocean can be. The same thing cannot be said about Autism. In my own personal situation with the Lost and Tired family,  I find myself failing to see the beauty behind the challenge. It's so easy for me to get overwhelmed by all the challenges we face,  day in and day out.  Honestly,  the weight or responsibility and be absolutely crushing at times. So many times,  I'm asked how I manage. I never really know what to say to that question. In truth,  I really don't know. However,  after thinking about this for some time,  I have come to have a better understanding of how and why I keep going. While the…

Very few things ever seem to go as expected.  Lizze's PT today was a bust because of a few reasons but basically the prescription was not right. Hopefully this will get straightened out soon so she can reschedule. It sucks when you mentally prepare for something,  only to have it fall through at the last minute. Sigh.......?? Posted from WordPress for Android

Lizze has physical therapy this morning.  She had a really rough day yesterday so I hope she does ok with this today. The physical therapy is for her migraines I believe.  It's kind of a last ditch effort to help prevent them. I could be totally wrong on this one though.  Everything kinda blends together after awhile.  Maybe it's for the fibromyalgia?  Either way,  I think it's a great way to start the week,  albeit,  a painful one. I'm really proud of her for not giving up and continuing to push through the pain.   Awesome job honey,  what a fine example you are setting for the boys :-) Posted from WordPress for Android