Say hello to #Autism Awareness

As many of you are aware of,  the Lost and Tired family was very recently in the paper. However,  what I didn't know at the time was that we actually made the front page.  We literally almost took up the entire front page.  Since we don't get the paper,  we had no idea until my parents told me. Lizze and I had assumed that the article would be buried somewhere in the paper and not easy to find.  This was quite a surprise. I wanted to share this with you folks. Say hello to Autism Awareness :-) **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive the typos. Auto-correct and I don't get along very…

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Four more….

In about 2 hours the appointments for the day begin.  Lizze will get things started for us this morning. Shortly after that,  Emmett will get his turn with OT and Speech this afternoon. Tonight Emmett has therapy with Dr.  Pattie. Thankfully,  that should be it for the day. Tomorrow will bring with it a return to Akron Children's Hospital,  only this time it will be Elliott's turn at the Rheumatologist. I hope everyone has as good a day as possible.  :-)  Best wishes to all of you. **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive the typos. Auto-correct and I don't get along very well.

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Terrible Tuesday

Well,  we have manic Mondays and the only thing I could think for Tuesday was Terrible Tuesday. On days like today,  terrible is a pretty accurate description. Elliott is sick,  Emmett is in a flare and Gavin has already had at least one meltdown this morning. Gavin,  decided that he didn't want to go to school today.  Typically,  we keep him home from school after an infusion but he's been doing just fine the last couple of times. Something else is going on with him today. I just don't know what that something is.......yet. **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive the typos. Auto-correct and I don't get along very well.

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Can’t win for trying

Well,  tonight is going to be fun.  I went to check on the boys before bed and Elliott has spiked a fever.  He's all congested and at about 102°f. Lizze called him off for tomorrow as he is running a fever.  Hopefully,  he will feel better soon. We just finished up the rest of his makeup work tonight before bed. Man alive,  we just can't win for trying.  :-( **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive the typos. Auto-correct and I don't get along very well.

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Stealing from a special needs family: Breaking In

I wanted to update everyone on the last little bit of drama surrounding the theft of the Lost and Tired family van. A few days ago,  we came home and found that the deadbolt on the front door had been tampered with. The face plate was all scratched up and our wasn't working well and the barrel was jamming. What clearly happened is that someone tried forcing the wrong key in the deadbolt.  I would assume it was the same people that stole our van and kept the house key. That's the only thing that makes any sense. It wasn't Lizze or myself.  That's all we know for sure,  aside from the fact that whoever did this,  didn't make it in. This doesn't really change anything as we knew that…

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It’s about freaking time

As you know,  Emmett went to the Rheumatologist this morning at Akron Children's Hospital.  The concern was Juvenile Rheumatoid Arthritis.  While the blood work is pending and we should have the results next week,  he does not appear to have JRA.  I can't explain just how awesome this news is.  This never happens to us.  We hardly ever get good news from a doctor. This time it appears to be a different scenario. He had to have blood work done but they are not expecting any to turn up.  What an awesome way to start this crazy,  crazy week. Thank you for all your kind words,  thoughts and prayers.  My heart goes out to all of you out there who are dealing with any type of arthritis. **Thanks for reading**…

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Welcome to Pediatric Rheumatology

We have arrived at Akron Children's Hospital,  Rheumatology clinic.. I'm so desperately hoping to actually get answers this time.  Typically,  we end up with more questions than answers.  I hope for Emmett's sake and for our sanity,  that we can find some help. **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive the typos. Auto-correct and I don't get along very well.

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8th Antibody Infusion

Gavin is currently on his way to his 8th antibody infusion.  Grandpa is taking him today,  so I will not be documenting this particular infusion. I'm confident that Gavin will do just fine. The reason we are not going to be with him today is Emmett has a very important appointment at about the same time.  They are both at Akron Children's Hospital but on different floors.  My Mom and Dad have Elliott and will be hanging out with him today while we are gone.  Please keep Gavin and Emmett in your thoughts and prayers today.  :-) **Thanks for reading**        -Lost and Tired Please join our Community Autism Support Forum Posted from WordPress for Android so please forgive the typos. Auto-correct and I don't get along very…

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