#Autism, PFAPA and a Sinus Infection

Lizze and my littlest minion Emmett,  have arrived home from the doctors.  Apparently,  it was a good thing we took him in because he has a nasty sinus infection.  I looks like antibiotics will be on the menu tonight and for the next 10 days. Hopefully, this will help him to feel better.  Our doctors are awesome and we are sooooo grateful that they do such a great job with our kids :-) Between the #Autism,  PFAPA and now a sinus infection,  we are lucky to have medical staff that understands and works with our boys unique needs. If your in the Canton area,  we go to North Canton Medical Foundation.

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Things can change in minutes

In the 5 minutes that past since I last posted about all we had left to do today,  our plans have changed. Lizze just called to tell me that the rest of the day has been canceled.  Dr. Reynolds went home sick and Dr.  Pattie has an emergency.  I hope both of them are okay.  So,  as it turns out,  this is it further rest of the day.  While it sucks that we have to wait 2 more weeks for Elliott to get any relief, we will be able to call it quits much earlier today than previously planned.  That does have its benefits.

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An apple a day keeps the doctor away

We have all heard the saying,  and apple a day keeps the doctor away. I'm here to say that an apple a day doesn't really keep the doctor away. Don't believe me,  just ask Emmett. Emmett is currently at the pediatricians office.  He's in the middle of a fever flare and is now actually sick as well. He is just a miserable little kid right now. His mouth is completely filled with cold sores,  and they look horrible. We don't normally run to the pediatricians office for a cold but in Emmett's case,  we aren't sure what's what. Does that make sense? We do know what is actual illness and what is just part of the fever flare. Lizze is feeling well enough to take Emmett to the doctors but…

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#Autism and Anxiety: Interfering with life

Elliott is so extremely anxious that he is literally an emotional ticking time bomb. He hates school now because,  well honestly,  I don't know why. We literally have to carry him,  kicking and screaming to the car. There isn't anything going on at school that would explain this.  I think he literally counts the minutes until he comes home. I hate that life has become so challenging for him. I wish I could magically fix everything for him but I can't. We see Dr.  Reynolds tomorrow afternoon to discuss medication options again.  After the Zoloft disaster,  I'm a bit nervous to try anything else.  :-(

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Gavin’s EEG: All done

Gavin's EEG was a success.  We don't have the results or know what anything means yet.  However,  we have an appointment with the neurologist soon and we'll find out then. The experience for Gavin wasn't a bad one.  I don't see Elliott doing well with any of this. He won't tolerate this well and probably freak out.. Having said that,  he may totally surprise me and that would be a-okay with me. I really can't say enough positive things about Akron Children's Hospital.. They are sooooo great with the kids and make an otherwise unpleasant experience, better.

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Gavin’s EEG: All hooked up

Gavin is officially hooked up and ready to go.  He did a great job.  In fact,  she said she wishes all her patients did this well. Great job Gavin.  Now I wait 2 hours for the test to be finished.  :-( I'm so freaking tired right now.....

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Gavin’s EEG: I can stay

Gavin is currently getting hooked up to the EEG machine. They are sooooo nice and understanding.  I can stay with Gavin but he's fine and so I'll hang in the waiting room for a few hours. The really good news is that I can actually help out with Elliott test on Monday. Thank God for that. There was no way that Elliott would ever go through with the EEG without me being right there with him. They said I can absolutely be there the whole time and even help with the test. Awesome :-)

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Gavin’s EEG: Way to freaking early

Gavin and I have arrived at Akron Children's Hospital. It's about 5:35 am and the building we are in is deserted at this hour. I had to call to let then know we were here. I'm not sure if they are going to let me go back with him. Lizze said that she thinks I may just have to wait in the waiting room. This may work for Gavin as he's a brave kid for the most part. He'll go back without a problem because doesn't fear to many things. Elliott on the other hand, will not be okay with this. I'm gonna talk to the staff about that today and try to make special arrangements for Elliott. It's gonna be a long morning..

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