We will once again be returning to the neurologist at Akron Children's Hospital,  this time for Gavin. You may recall that Gavin has been having absent seizures.  They are triggered by sleep, hyperventilation and lights. I don't know how we can avoid those things.  Anyway,  we are going to discuss how his current meds,  at their current dose,  aren't working. They other thing on the agenda is an extended VEEG. The neurologist has said that Gavin needs to have at least a 48 hour VEEG. Basically,  Gavin would move into the hospital for 2 days and be hooked up to the leads and monitored for seizure activity.  We are suspecting they also happen in his sleep because he's been wetting the bed and that is not normal for him. Of…

I've been a special needs parent for almost a decade now. The one thing that has become very apparently to me is the following.  #Autism has a great deal to teach me and I have a great deal left to learn. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

You would think that Emmett being in as much pain as he's in,  would slow him down.  No way,  not Emmett.  He's bouncing off the walls.  He's causing trouble with his brother Elliott and getting way to aggressive with Bella. I realize people handle things different and perhaps all the pain has him overstimulated and this is the result of that. All I know is he's driving me bonkers. On the positive side,  the Benadryl will slow him down.  That's a positive thing I suppose.  The only treatment we have is going to make him sleepy.  I'm not ok with him going through this but I'm okay with him being sleepy.  Sigh... **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism…

Even when it comes at the end of the night,  peace and quiet is always a welcomed visitor at the Lost and Tired household.  Unfortunately, we don't get these visits very often. However,  when they do come around,  they are greatly appreciated and when they leave,  they are sorely missed. This quiet moment was after the boys were in bed and I just couldn't keep Bella off of me or my eyes open.  Bella kinda sucks all the energy and stress away when she snuggles. I think that everyone should have a Bella of their very own. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android so please forgive…

I apologize in advance if anyone is offended by this post, as that was not my intent. ~End Disclaimer I'm so pissed off right now. I don't understand why Emmett cannot catch a friggin break. He just started another goddamn fever cycle.  This makes the 3rd cycle in the last 30 days.  Each cycle lasts 7-10 days.  During this time,  he's in a great deal of pain and often inconsolable. The last 2 fever cycles ran back to back (which has never happened before) and finally ended a few days ago.  This evening we noticed Emmett's cheeks were very flush and while at therapy tonight with Dr. Patti, we discovered that his mouth was breaking out in cold sores once again.  So I have to ask...WTF God could you show the…

No matter how frustrating Emmett can be,  his smile just melts me every time. It's really hard to be angry for long.  All my boys have amazing smiles,  they get that from their mother.  :-) The many faces of Emmett John **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)

I wanted to update everyone on Gavin's foot and ankle issues.  I spoke with his PT yesterday and we got a referral to an orthopedic specialist.  We need to get that appointment made today. However,  on the positive side. Yes you heard correctly,  I said positive side.  Basically,  Gavin naturally walks on the inside of his feet,  however,  now he's walking on outside of his feet.  The bones in his feet are actually shifting and he has these bony knobby type things on the outside of his feet as a result.  The orthopedic specialist will know if anything needs to be done about that.  However,  we're thinking that Gavin will likely only need special inserts for his shoes. That would be friggin awesome if that's the case.  Something with Gavin…

For my newer readers this is a post where I ask an #Autism related question a you answer,  ya know,  if you feel like it :-) This is something we do just about every day in the #Autism Help forums.  People seem to really enjoy it.  :-) What do you find me the most challenging about raising a child with #Autism? Likewise, what do you find the most rewarding? **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store Posted from WordPress for Android so please forgive any typos as auto-correct and I don't see eye to eye. :-)