Lizze has had a really rough day.  Her pain has been unbearable,  both physically and emotionally. She has pushed through it for the sake of the kids but at great personal expense. I doubt that tomorrow will be any better. One of the ways that I know just how bad things are for her is the collection of animals around her. When she is in as much pain as she is,  the animals seem to know and refuse to leave her side. It really is an amazing thing and it happened again tonight. Lizze fell asleep on the couch tonight and is buried under a blanket of animals. They act as a pseudo weighted blanket and provide her with comfort,  while often times annoying her at the same time. They…

Gavin created what he calls Lego City today. He made this on his own but Elliott wanted to be in the picture with him. It's pretty intricate and he once again used as many Lego’s as he possibly could :-) He has some thing about the way he values his creations.  The more Lego’s he can cram on there,  the more he values it.  That’s one of the reasons we tend to run into issues with Lego’s. There is never enough to go around.  **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive any typos. I do know how…

While today has been anything but a victory,  I'm doing my best to remain as optimistic as possible for the rest of the Lost and Tired clan. With that said,  I wanted award a Today’s Victory.  I actually started this post before we got the news this morning about Gavin's health. Today’s Victory goes to my oldest son,  Gavin. He has just finished reading another book.  This time it was the classic Robin Hood. He read it in only a couple of days and I think this may actually be the second time he's read this book,  cover to cover. He also wanted me to make sure that I share with you that this book had 20 chapters. We require that Gavin spends time reading every day because if we…

This is the saddest kid ever to eat a piece of his own birthday cake. Poor Emmett John is not having a good day.. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

They say it comes in 3's,  hopefully this will be the end of it for awhile. I just got off the phone with the Cleveland Clinic.  I was calling to make Gavin's appointment with the head of pediatric psychiatry.  This is the guy that has worked with Gavin in when he was admitted for a week,  about 2 years ago for delirium. Instead of being able to actually schedule the appointment,  I was told that he has transferred out of state to Massachusetts. WTF?  This is the 3rd doctor this month and the 2nd of the day,  that we have lost. I don't know what to say at this junction. There isn't another doctor,  that we are aware of that is qualified to treat Gavin. Thankfully,  the staff at the…

When you have a chronically ill child you do everything in your power to fix the health issues. You try like hell to be positive and carry on with life as normal as possible. However, in the back of your mind, your always afraid of when the other shoe is going to drop. When the phone rings unexpectedly and it's the hospital or another specialist, your heart sinks because you have no idea why they would be calling you.  This may not apply across the board but it certainly does the Lost and Tired family, especially when it comes to Gavin. Today, an otherwise routine call to oncology has turned into an absolute nightmare for us. This is what happened and everything we know for sure at this very moment in time.…

The mail arrived bring us news of yet another doctor leaving for a new location. This time it's our developmental neurologist and she's leaving for the Cleveland Clinic. In all my years as a special needs parent, we have lost this many doctors at one time. We have to now decided if we move with her to the Cleveland Clinic or if we start all over from scratch with a new doctor. Both ways have their advantages and disadvantages.  If we follow her to the Cleveland Clinic than we don't have to start over with a new doctor. At the same time however,  the expenses involved with following her to Cleveland are likely to be outside of what we can afford in a regular basis. If we start over with…

After talking yesterday,  Lizze and I decided to reschedule Gavin's EEG.  It was supposed to be this Friday and last for 5 days.  However,  life has thrown us a curve ball and there is simply no way to pull this off right now. It's only being pushed back about 2 weeks,  so it's not a huge deal but the fact that we have to make a decision like this really bothers me. There are a number of reasons for rescheduling.  For starters,  Lizze would be the one going with him and she's not physically in a place to take that on right now. Then we have the cost itself.  Lizze would have to buy 3 meals a day for 5 days and that would add up quickly. We are still…