“Loving, supportive parent” or “a barer of false hope”?

I want to introduce to you all, my wife, Lizze. She's an admin on this site but rarely ever posts. I asked her to post this today because I really, really liked what she had to say. I think that it's an important message that may apply to many of us. If you want to read more of her writings, please visit her blog at www.mylifebeyondlabels.com.   So Gavin has been having a more difficult time of things lately. Which makes me sad, not just as a mother but as his mother. Gavin is like a bead on a string - forever moving, forever changing...nothing is ever the same with him. One day he's high functioning, full fledged Asperger's-type behavior. The next he's lower functioning, and acting more like a stereo-typical Autistic child, Then…

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Today’s Victory: Never give up

I just going to cut to the chase.  Today’s Victory goes to Gavin and let me tell you,  this is a big one. Emmett dropped Elliott current favorite toy down the vent. Elliott has been beside himself with anxiety and grief. Gavin had tried previously to reach into the tiny opening but couldn't feel anything. He decided to give it one last try because he knew it was important to Elliott.  He actually found and recovered the lost toy. He just made Elliott's day.  Hi-fives were had by all.  :-) **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive…

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Happy 4th of July 2012

I wanted to wish all of those celebrating the 4th of July, a safe and happy holiday.  Please remember all those who have sacrificed for our great nation. Enjoy the day and I will speak with you all again,  very soon.  :-) **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

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Special needs parenting and those tough decisions

Lizze and I never have the luxury of easy decisions.  For example,  we would like to go celebrate the 4th of July with family in Youngstown,  Ohio.  This is one of the few times where we cod actually pull it off. So often we are unable to go for one reason or another. The problem,  or rather the concern about going is the weather. It's supposed to be in the high 90's again and the humidity will likely be worse.  Where we are going,  the boys would not be able to spend much time inside and they don't handle the heat well at all,  especially Gavin.  Don't get me started on all the safety and health related reasons for Gavin alone.  The reasons not to go simply outweigh the reasons…

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#Autistic Artwork

I wanted to share with all of you some artwork that amazingly talented little men did today. They are quite talented and I'm proud to share it with you... **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

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What I found during an imaginary train ride with my kids

Yesterday, I was hanging out with Elliott and Emmett, trying to redirect them away from the meldowns Gavin was having throughout the day. That is often easier said than down. However, Emmett has been pushing the dinning room chairs together lately and pretending it's a train. That in and of itself is awesome to see. Anyway, yesterday I was in desperate need of finding my happy place. I always joke around about that all the time. Well, It's more like 60% joking and 40% serious. Actually, it's more like 40% joking and 60% serious. You get the point. I figured, why not take a ride on Emmett's imaginary train and see what I can find along the way. Elliott and Emmett really got into it and so I thought I…

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#Autism, #Epilepsy and sleeping with eyes open

I started on this post a few days ago and never finished it.  I wanted to do so now because I think this is important. The other day Elliott went to wake up Gavin and couldn't.  Gavin's eyes were wide open and so Elliott assumed he was awake but ignoring him.  No matter what he did,  Gavin wouldn't respond. Elliott started to panic and went screaming to Lizze for help.  Lizze ran into Gavin's room and found him laying in bed with his eyes wide open. She couldn't wake him up for almost a minute and thirty seconds.  That doesn't include the few minutes Elliott was previously trying.  Turns out that Gavin was having another seizure.  There were no outward signs like full body shaking because this was apparently another…

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What kids show do you HATE the most

We all suffer through watch shows with our kids.  While we enjoy the time with our kids,  the suffering part comes along with the obnoxious shows they have on for kids anymore. I thought it would be fun to share what shows we hate the most and why. Personally,  I can't stand Dora the Explorer.  I don't know that I have a really good reason for it,  but after years and years of having it crammed down my throat,  I simply can't stomach it any more. I mean,  who let's their little kid wander the jungle alone with a friggin monkey anyway? I also don't like how they make very dangerous animals look friendly and approachable to kids. Who really pals around with an anaconda for a day and doesn't…

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