After 3 or 4 back and forth trips to Akron Children's Hospital, I finally arrived home for the night around 2am. The plan is to head back up to the hospital sometime this morning.. Right now I can't keep my eyes open... **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

Lizze sent me home and I just arrived safe but exhausted.  Gavin was sleeping and my back simply couldn't take staying there. Gavin's heart rate is switching off between high and higher.  He still has the fever but has been taking something for that. I'm so tired and I've driven back and forth 3 or 4 times today already. I'm hoping to get at least some sleep tonight so I can head back there in the morning. Thanks again for everything and dot forget to check out my Playstation Vita auction on ebay: http://pages.ebay.com/link/?nav=item.view&id=200792330232 **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy…

I made it back home for less than an hour before being called back to the hospital. Gavin's heart rate is back up again and Lizze wanted to make sure I was there tonight. It's going to be a really long night.  Your continued prayers are greatly appreciated.  Thanks to everyone for all your support...  Things are not good for the Lost and Tired family..... As an FYI,  I'm listing my Playstation Vita on ebay ASAP. It should be a great deal for anyone looking to grab Sony's Newest Console. It comes with a 32GB memory card and Hot Shots Golf.  It also includes a 2 year accidental protection plan and some accessories.  I just swapped it out at Best Buy so this is brand new. I'll post a link…

I made it up to the hospital to see Gavin,  in record time.  I was dropping the boys off with my family and I got a text from Lizze saying that Gavin was having another crisis. When I finally got through to the hospital,  Lizze told me what had happened.  Gavin had some more heart problems again and actually had to be sedated.  This happened during his echo cardiogram.  His speech is slurred and otherwise gibberish.  When I arrived Gavin's resting heart rate was in the 150's. He also has a migratory rash that is really weird.  The rash literally appears and than disappears about every 5 minutes. It's really disconcerting to watch this happen. I don't know what we are supposed to do but I don't want to go…

Gavin isn't doing so well right now.  I don't have time to go into details at the moment.  They are calling this a dysautonomic crisis. He's also experiencing a cardiac crisis as well.  His last bout with cardiac pain required him to be sedated because he was freaking out so much.  As soon as I get more information and time,  I'll pass whatever I have along. Right now, I'm trying to figure out a way back to the hospital.  I'm also working out something for Elliott and Emmett as they can't go with me.. Please say a prayer and keep both Gavin and the rest of the Lost and Tired family.  We need everything we can get at this point.  **Thanks for reading**        -Lost and Tired Please…

I spoke with Lizze this morning and things have changed a bit for Gavin. He had another bout with chest pain last night.  Akron Children's Hospital has wisely decided to treat Gavin as a cardiac patient.  Until they can confirm that nothing is wrong,  they are going to treat him as though something is.  The cardiologist came in today and explained to Lizze that Gavin's 12 lead EKG was abnormal.  He said that it could simply be that because Gavin's heart is in the center of his chest,  it through the EKG off hut he's going to compare it to Gavin's previous EKG's to make sure.  At this point,  Gavin is resting and being monitored for seizures. Gavin is also being worked up for something called Marfan Syndrome.  This is…

Today’s Friday Forum topic is about changes you would like to see within the #Autism community. Basically, I thought it would be interesting to discuss what changes, if any, you would like to see within the #Autism community. Please share your thoughts and opinions in a constructive way. There are no right or wrong answers. :-) Let's help each other learn to better survive.... :) The discussion will take place in #Autism Help Forums. Registration is simple, fast and free. You will need to confirm your email before being allowed to actually post anything. Can’t be at your computer today? No problem. Download and install the free Autism Help App from the Google Play Store. Either click the link or simply search the Google Play Store for Autism Help. You can sign up and access…

Well,  this was the first of 4 nights that the boys and I are home alone.  Gavin and Lizze will be in the hospital until Monday. Trying to manage 2 boys with #Autism,  by myself,  is very challenging. I don't know how the single parents out there do this. Usually,  when it's just me and the boys,  we camp out in the living room or the squishy couch. The squishy couch is simply,  two couches pushed together in order to make one giant bed. The boys get a big kick out of it,  so it's become legendary in the Lost and Tired household. The only issue is that the dogs don't like to be left out of the fun.  When the idea of the  squishy couch was first conceived,  I…