For all the headache and nightmarish behavior we see from Gavin,  I want to share this with you.  For the most part,  this past week since Gavin's been home has been pretty good.  There have been a few frustrating moments for him but not a single meltdown in over a week.  That's down from several a day. It think there are a few things at work here.  For example,  I'm trying to spend more one on one time with Gavin,  even when I really don't feel like it.  I'm tired all the time and even well behaved,  he is exhausting.  We are working on rewarding his positive behavior once again.  That may seem like common sense and for most kids it is but Gavin exploits every reward system we have…

We just made it home from the pediatricians office. Gavin was on a borderline automatic crisis,  likely triggered by the carrier ride and Elliott and Emmett were on complete overload.  Gavin pulled through without incident,  thank God.  Elliott and Emmett both checked out a-okay. We are going to take a more cautious approach to medicating Elliott.  Due to the fact that all the records haven't transferred yet,  we didn't start anything. We like the conservative approach and that's one of the reasons we followed him 30 minutes north of his old practice. Gavin's health has to take priority but we are going to move at a pace with Elliott that will be as fast as we are both comfortable with.  Lizze and I find that perfectly acceptable.  Because our kids…

Today is the day we have been waiting for.  We make our return to our favorite pediatrician of all time.  This also marks the first day of Elliott's new medication.  The new medication is called intuitive.  This medication is for use with ADHD and anxiety.  While we don't know if Elliott has ADHD,  it's a very real possibility.  We do know for sure that Elliott deals with extreme levels of anxiety. This medication should cover both bases. We discontinued the Risperdal a few weeks ago because of side effects and it wasn't working. Hopefully,  this will help Elliott to relax a bit more and not worry so much.  Have any of you had experience with intuitive and if so,  was it a good or bad experience? Thanks **Thanks for reading**…

I wanted to update you all on how Gavin was doing. I want to share how life has been since his latest stint in the psychiatric unit at Akron Children's Hospital.  I also wanted to update you on autonomic issues he was experiencing last night. First things first.  We opted not to go to the hospital last night.  Perhaps that was the wrong decision but Gavin seemed stable and was feeling a bit better.  He went to bed without any further symptoms.  Hopefully,  that will carry over for the rest of the day.  Time will tell.  Thank you for your thoughts and prayers.  They seem to have helped.  :-) Bow has life been since Gavin's return?  That's a bit complicated,  much like Gavin himself. To his credit,  we haven't had…

That title was a mouthful.  I just love Emmett to death.  Sure he can be a little challenging and definitely not easy but nothing worth having ever is. Anyway,  he was soooooo stinkin cute,  I had to grab a few pictures.  He just finished eating his extremely overpriced and outrageously delicious,  chocolate coconut milk ice cream.  I think he liked it.  What do you think? **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help" app at the Google Play Store This was posted via WordPress for Android, courtesy of Samsung's Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct is working against me.

This week is going to be crazy busy.  So far,  we have about a dozen appointments this week. That's not including any pending appointments or ones that will come up at the last minute. We are hoping to see the mitochondrial doctor and are waiting on the call.  We also have to make a return trip to Cleveland as soon as we get the call. It's honestly a bit daunting with just appointments that I know are there and frightening to think about any surprises that may pop up at the last minute. I'm really hoping that Monday is kind to us and for that matter,  all of you as well. **Thanks for reading**        -Lost and Tired Please join our Autism Help Forum Look for "Autism Help"…

I'm so frustrated right now because I don't know what we are supposed to do with Gavin. He's showing the very same signs and symptoms that ended him up in the hospital,  twice in the last 30 days. There are no instructions or standing orders as far as an autonomic crisis,  partly because they are so uncommon. This evening Gavin has presented with blurry vision and chest pain. I have him on a heart rate monitor, so we can have a real time gauge of where it's sitting at.  In the past hour, Gavin resting heart rate has increased to about 107 bpm,  up from about 90 bpm. When he stands up,  his heart rate jumps up about 20 bpm. This is not necessarily a reason to go to the…