I’m haunted tonight by my son’s words

As much as I have been trying,  I can't get those words out of my head.  When Gavin told us last night that he doesn't care about anyone,  it was a complete shock. I mentioned in a previous post that what shocked me the most about this,  was how well he was able to articulate that. He wasn't telling us something we didn't already know or at least strongly suspect. It was just the fact that he actually said those words. It's one of those things in life that you can never unhear. I'm haunted tonight by my son's words. This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me. Please join our…

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Putting out the fires

Elliott was an emotional wreck once again tonight. The poor guy is so stressed out and there doesn't seem to be anything I can do to provide any long term relief. At this point it's all I can do not put out the individual fires. It's not very effective or efficient but it's all I can do right now. Do any of you know what that's like? Never really being able to address the root of the problem because you're too busy putting out individual fires? However, he feel asleep tonight and so far, is still asleep.  This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me. Please join our Autism Help Forums…

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“I don’t care about anyone”

Gavin admitted in therapy tonight that he doesn't care about anyone. This wasn't a huge shock to us but I never expected for him to be able to articulate that. He told us that he wishes he could care,  he just doesn't. We told him that we were proud of him for being honest with us.  We also made it very clear that this doesn't make him a bad person, it's just part of who he is. It does mean that we will have to work very hard to try and help him learn respect other people's feelings. No one knows quite what to make of this. Having said that,  it does fall in line with his diagnosis and what everyone has said. He also admitted to being inappropriate with…

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Bring ’em Home

I'm officially back into the school year again.  I picked up the boys from school and let Lizze try to rest for a little while.. Emmett and I were both excited to see them walking out to the van.  Both boys had a good day and Gavin said his was free from chest pain,  nausea and falling asleep. That's a great start to the year.  Elliott was quite upset as we were driving home.  Apparently, on of his new friends kept touching him.  He was also told to be quiet by this new friend as well.  At least this is normal 1st grade stuff.  I like that.  Normal is such a foreign word to me,  but I like it :-) This was posted via WordPress for Android, courtesy of Samsung’s…

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Natural Killer Cells: The new path

What was supposed to be a simple follow up with immunology for Emmett was anything but. Because Emmett is still having the cycles hitting every couple of weeks his doctor is now looking down another,  incredibly rare path.  I don't fully understand what we were told this morning but we are expecting a follow up call from her when the results come in. She said that she thinks me might have something called Natural Killer Cells. Again,  I'm probably butchering this explanation but I'm doing my best.  Basically,  Emmett's Natural Killer Cells aren't working properly.  She thinks that the mouth sores may actually be Herpes and because his NK Cells are working too slow, he's having regular outbreaks.  It becomes an endless cycle. If the lab work confirms this,  he…

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Strengthening resolve

I've mentioned many times before,  that when it comes to Gavin,  I have a hard time accepting that he is capable of the things he is.  In the back if my mind,  there's always this little voice that keeps saying that he's just misunderstood. As a parent,  it's really difficult to believe that your child is broken in a way that can't be fixed.  I know that using the word broken is going to rub some people the wrong way. However,  when I refer to parts of Gavin as broken,  I'm not referring to autism.  I'm referring to the fact that he's missing crucial neurological connections that can't be fixed. These missing neurological connections are the root cause of the very serious mental health issues. Truthfully, I hate using the…

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Emmett and Immunology

We are on our way to Akron Children's Hospital to have a follow up in immunology for Emmett.  With all the Gavin thongs going on, he's overdue for this appointment.  Hopefully, all will go well.  :-) This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me. Please join our Autism Help Forums Look for "Autism Help" app at the Google Play Store

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How does your child with #Autism handle anticipation?

How does your child with #Autism handle anticipation? For example,  do they stress out while waiting for something to happen, even if it's something positive they are waiting for? In my experience,  this happens when my kids are promised something that either never happens or is delayed.  Anticipation causes a great deal of anxiety in my kids and leads to this like meltdowns, sleepless nights and stress. This is why we never tell them that something is or isn't going to happen,  until we know for sure. I'm sure that this may be different for everyone and that's why I'm posing the question above. How does your child with #Autism handle anticipation? This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I…

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