Lizze’s autonomic journey: Arrived at the Cleveland Clinic

We have made it to the Cleveland Clinic with about 15 minutes to spare. That's pretty awesome if you ask me.  I love being early to things.  :-) Lizze is really nervous and all I can do is offer my support.  I don't know what she's going through and I won't pretend to understand. I'm worried about her and I really,  really hope we can find some answers. Most of all,  I want her to find peace and love life as pain free as possible. Please keep her in your thoughts.  We need'em.  :-) This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me. Please join our Autism Help Forums Look for "Autism…

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Mystery Picture

I thought it might be fun to start taking pictures and see if you can guess what it's a picture of. My goal to do this like those old science magazines we used to have in school.  Do you remember to pictures in the back? They were pictures of mystery objects and you had to guess what they were. Anyway,  I thought might break things up a little bit.  Here's today's mystery picture.  Throw your best guess into the comments below.  :-) This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me. Please join our Autism Help Forums Look for "Autism Help" app at the Google Play Store

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What will happen to my child with #Autism when I’m gone?

I've talked about this many times.  I think it's really important to voice our fears or concerns for our child's future because it will help everyone focus on our common goal. Our common goal should be to spread #Autism Awareness so that our children can have the brightest future possible.  One of the things that I think transcends our differences is a common concern or fear for our child's future. The biggest fear I have and that I hear from other parents is what will happen to my kids when I'm gone? That terrifies me and keeps me up at night.  I'm doing everything I can to prepare them for the world and prepare the world for them. I wanted to openly and honestly discuss this because there are many…

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People aren’t the only ones scarred by the past

Maggie is our amazing English Staffy. She was rescued from a fighting ring in Akron Ohio about a year before she came into our lives. She's a very intimidating dog but has an absolute heart of gold. She is in so many ways, the perfect dog.  She's protective and fantastic with the boys, which she views as her babies.  She's also great with other animals. Everyone that meets Maggie, falls in love with her. Having said that,  she has this habit that drives me nuts.  She inhaled her food.  This is probably from when she was used as a fighting dog and was under fed. She's about 4 years old now but still does this. Basically,  what she does is eat so fast that she pukes it back up.  When…

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Distractions

Emmett has been really focused on beating Lego Batman. While we do limit time in the computer and with video games, it's nice to see him work so hard at something.  It's also a nice distraction for the times that things aren't going so well in the house. This was posted via WordPress for Android, courtesy of Samsung’s Galaxy S III. Please forgive any typos. I do know how to spell but auto-correct hate me. Please join our Autism Help Forums Look for "Autism Help" app at the Google Play Store

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A chilly morning

It's actually pretty cold the moment. It's likely that we can get the gas turned back on today, however, we won't be home for them to do it.  It looks like we will be one more day without the stove,  hot water or the furnace. I'm choosing to focus on the matters at hand and that's our trip to the Cleveland Clinic today for my wife. My goal for today is to worry about the things I have control over and back burner the ones I don't.  That's not something that comes naturally to me but I do what I can to practice this kind of attitude because otherwise I would stress out a whole lot more.  Who needs that? I know I don't. This was posted via WordPress for…

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Nothing an extra blanket won’t help

I've been up on and off tonight. I just can't seem to slow down the thoughts swirling around in my head. One of the things weighing heavy at the moment is that our natural gas was shut off.  Aside from the obvious,  I'm concerned that the house will get to cold at night without heat.  However,  despite the outside temp being in the 40's, it's not that bad in the house. I was expecting the temp to drop much faster since the house is so old and poorly insulated. Thank God for small favors.  It's about 2am and there is still plenty of time to get colder but I think we are going good to make it through this. For tonight, we prepared a few extra blankets and hopefully we…

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A new search for answers begins

This afternoon, Lizze and I will be returning to the Cleveland Clinic once again.  This time however, Gavin will be at school and Lizze is going great to be the patient. She will meet with one of the top autonomic specialists in the country. The purpose is to figure out what's going on with her every declining health.  This will hopefully shed some light on the migraine she has had for the better part of the year.  We also hope to find answers about her sleep disorder, extremely low blood pressure and more. Gavin doctors believe that Lizze may hold some clues as to what is going on with Gavin as well.  They currently believe that Lizze has some sort of autonomic disorder and that is likely where Gavin acquired…

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