Captain Independent

Let me introduce to you Captain Independent,  aka Emmett John. Emmett has been wanting to do everything on his own lately. His latest success has been putting himself into his carseat.  He can even do the buckles all by himself.  :-) Having said that,  it's not always a quick process.  We are having to leave a little bit early so that he can buckle himself in.  Today it only took a few minutes and he's so determined to do this.  Lizze and I do our very best to make sure we support his need for independence, as we think it's awesome.  Sometimes we have to help him along because we do have to get to our destinations as close to on time as possible. Most of the time he's okay…

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Today’s #Autism Victory: 3MM3TT

Today at therapy, Emmett was playing with the magnetic numbers and letters while waiting for his turn. Next thing I know, he comes running over,  using his outside voice saying,  "I wrote my name, I wrote my name".  Lizze and I went over and this is what we found.  I'm super duper duper proud of him.  I love the way he improvised and with the 3's. :-)  I feel so happy when I see him do things like this.  He's come so far in such a short amount of time.  I'm one proud papa bear.  :-)

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Making Memories

Today was pretty productive so far.  I'll share how Elliott’s appointment went a little later.  Right now I just wanted to share a picture of me and Elliott from our adventures today. I love these pictures because they will provide memories for a lifetime. I also love to see him smiling.  When he has days that don't go so well for him,  I can look at the pictures and remember that we do have better days.  :-)

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Lizze’s Journey: Rheumotology

I wanted to let everyone know that Lizze's journey to better health has taken a new turn. I spoke with the Cleveland Clinic and Lizze has an appointment with rheumotology. This is going to address her fibromyalgia and hopefully provided her with some relief from the constant pain. We will be making the trip on October 23 and meeting with a specialist. Hopefully they will be able to address her pain and provide her with new treatment options. At this point anything is better than what she living through right now.

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What has special needs parenting taught you?

I've been a special needs parent for over a decade now.  One of the things I have learned along the way is that I don't everything.  In fact, I know just enough to know that I still have a lot to learn. Having said that,  I think one of the most valuable lessons that I have learned along the way has been a real eye opener for me. I learned very early on, that I should never, never take anything for granted. Things can change in the blink of an eye and you can find yourself desperately missing what you didn't know you had.  That's one of the reasons I reach out beyond just the special needs community.  I feel that even the "typical"  families can learn from our experiences. …

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The Child of Rage (Viewer discretion advised)

The Child of Rage The Child of Rage is a documentary about a 6 year old little girl that was abused at a very young way and because of that, can't make any emotional connections. She has no conscience and hurts people with absolutely no remorse.  I wanted to share this documentary with you all. Several of my readers had recommended this film to me and I found it on YouTube. It's only about 30 minutes long but it's a long 30 minutes. I don't really know what to say about what I just saw. I think that for those of you out there thinking a child could never do the things that I have shared with you over the years through this blog, this will be an eye opener.…

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#Autism, Anxiety, ADHD and Medication

We will be taking Elliott to see his pediatrician in the morning. We will be meeting about what medication to try with Elliott.  In case your new to my blog or simply forgot, Emmett is experiencing extreme levels of anxiety. Essentially, he's a 6 year old little boy with aspergers,  living in a situation that is simply too stressful. He doesn't have the coping skills to deal with everything he's being asked to.  Heck, I'm 34 and don't have the coping skills to deal with everything.  Anyway,  the plan of attack was originally to treat the signs and symptoms of ADHD.  The reason for that is that the medication is very fast acting and we'll know right away if it's going to work.  Having said that,  the problem is that…

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Operation Hope: I spoke with the Cleveland Clinic this morning

I promised that I would keep you all updated as to the progress of Operation Hope.  I received a phone call from the Cleveland Clinic this morning.  It was Gavin's psychiatrist and he was returning my call about the letter we needed.  He said that he would have expected the letter done by tomorrow and mailed sonwe receive it this week. This is a really big step forward because the Cleveland Clinic carries a great deal of weight and they are backing us up on the residential treatment plan.  There really is really no other option. I also got my email drafted and sent off to Dr.  Reynolds, Gavin's primary psychiatrist.  He will be drafting a letter as well.  As I said,  this is progress and a big step forward…

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