I wanted to update you all on the status of Operation Hope.  Honestly, nothing has changed. I'm waiting to hear back from Wraparound on the status of funding. Gavin is still living with his grandparents and so far things are going well. The boys are still struggling but hanging in there. We're finally making some headway with Lizze's health at the Cleveland Clinic. That's really about all there is to the update.  Nothing too exciting.  However, we are surviving and sometimes that enough.

This is going to be another busy week.  Aside from all the regular therapies and appointments, Lizze will be back at the Cleveland Clinic. This trip will be the sleep specialist. While she's there, she's also having x-rays in her hands because the rheumatologist is concerned that there is arthritic damage to the joints in her hands.  The only way to know for sure is x-rays. Later in the week, Lizze also be having an EEG to rule out seizure activity.  Her neurologist is concerned because she can smell and taste cigars. This wouldn't be a big deal except for the fact that these are actually present.  The doctor says these can be a sign of seizures. I had never heard that before but he's the doctor.  These are just…

Emmett is in a really, really bad mood.  For the past few hours, if anyone speaks, not even to him, he screams.  I wish I knew what was wrong but he's not really talking at the moment.  If we ask him what's wrong, he screams for us to stop it.  :-( Elliott's bummed out that we can't go trick or treating due to the poor weather conditions. Lizze and I have promised to take the boys to Chuck E Cheeses on payday to make up for no trick or treating this year. Hopefully they will make it until Tuesday. I'm trying get to put a positive spin on this and make it seem like a good thing.  Unfortunately, it's not working. 

This is the first Halloween in as long as I can remember that Gavin isn't here with us.  With Gavin moved out and living with his grandparents, he will be doing this stuff over there and not with us.  It's really one of those bittersweet moments where doing the right thing feels somehow, less right. 

We are supposed to go trick or treating this afternoon with the boys.  The weather however, is pretty nasty at the moment. I'm really hoping to get them out this afternoon because they have been looking so forward to this. I can't wait to take their pictures wearing their costumes. :-) How do your kids handle trick or treat?

I don't know what the heck is going on with the boys but they have essentially been up all night. Emmett had a meltdown at 1:30 am and it lasted for quite awhile.  I have know idea what happened, he just woke up and thought it was time to get up.  I think Emmett ended up waking Elliott. Lizze and I have been back and forth with the boys all night. Is there full moon that I missed.