Read more about the article The Leap of Faith: We’ve heard back from the @ClevelandClinic
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The Leap of Faith: We’ve heard back from the @ClevelandClinic

Lizze received the call today from the Cleveland Clinic's exclusive Pain Rehabilitation Program. As it stands,  the earliest Lizze can get in would be towards the end of January. There are a few things that will have to be done first.  Lizze has to complete her sleep study and have the follow up appointment with the sleep neurologist. They said that this absolutely must happen first.  This way they can rule out apnea. We have figured out most of the expenses will be and here's the break down as it stands now. 1) Cheapest Hotel is $70/night x 15 nights= $1,050.00..... 2) Various textbooks will be about $50. 3) Food (breakfast, lunch and dinner) is out of pocket.  Total expense unknown. 4) If commuting, fuel will run about $200+/week x…

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October 31, 2012
Read more about the article Today’s #Autism Victory: The tag
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Today’s #Autism Victory: The tag

I wanted to share a small victory that occurred today.  This particular victory was won by one Mr. Emmett John. Not only did he wear a shirt for most of the day, but he wore a shirt with a tag still firmly in place. As many of you know, a lot of kids on the #Autism spectrum have sensory issues. One of the most common issues I have experienced with my boys is the dreaded tag. Many kids, including my own, can't stand the way the way the tag feels on their skin. The fact that Emmett is not paying attention to the tag today is a pretty big accomplishment. Typically, Emmett won't even touch clothes if they still have a tag. I'm really proud of Emmett.  He had a…

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October 31, 2012
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The double edged sword

Call me crazy but I was expecting things to get better, faster, once Gavin was out of the house. I knew that things wouldn't be better right away, I guess I was just hoping.  As it stands, Gavin's been gone for almost 2 weeks and things are still not going well on the home front.  We met with Dr. Patti last night and talked about that very thing.  She said that unfortunately, this is not something that's going to be fixed overnight.  This is very likely going to take a long time.  To show you just how traumatized Lizze is,  the very thought of him coming home puts her in the fetal position, sobbing. Gavin returned home briefly yesterday morning and that very brief return, less than an hour, knocked…

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October 31, 2012
My thoughts

Perfection

I feel like we've come full circle with Emmett in many ways.  However, the most prominent is his return to extreme levels of perfection. Everything in Emmett's life must be perfect. If it's not he screams. Throughout each and every day, I'm constantly having to address this with him.  I try to reassure him that everything is okay and attempt to help him work through it.  Unfortunately, there is literally nothing that we have found that helps.  Anymore, much of the day is spent tripping over words, trying not to say the wrong thing and set him off. We've tried sensory processing things like, massage or joint manipulation.  I can't begin to explain how overwhelmingly frustrating this is, for all involved. Emmett's miserable and the constant screaming is unbearable, especially…

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October 31, 2012
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Tips for those long waits at the doctors

I want to focus on getting the #Autism Help Forums busy once again and so I wanted to share today's topic. In the #Autism Help Forums, I call this an Ice Breaker. It's meant to bring in the lurkers and facilitate conversation. Please follow the link below and sign up for free and join the conversation. You can post pictures and videos and otherwise express yourself in more ways. http://lostandtired.com/autismhelp/showthread.php?t=21 Tips for those long waits at the doctors

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October 31, 2012
Read more about the article We made it to Akron Children’s Hospital :-)
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We made it to Akron Children’s Hospital :-)

We made it to Akron Children's Hospital after a somewhat hectic morning.  Thankfully, we didn't have to pull Elliott out of school because school was canceled already. Hopefully we will find that all is okay with Elliott.  He's probably going to need bloodwork this afternoon in order to find out what's going on.  When we get back, we are going to see Lizze's Grandfather.  Please God, let this afternoon go well.

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October 30, 2012
My thoughts

Please pray for Lizze’s Grandfather

Lizze just received a call about her Grandfather.  We need to say our goodbyes as soon as possible.  Please keep him in your thoughts and prayers.  Please keep Lizze and her family in them as well, especially Lizze's dad. 

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October 30, 2012