Read more about the article A Ginormous Update
Link / Major Update / My thoughts

A Ginormous Update

Alright folks, I'm playing catchup here and this will be a rather large update. So buckle up, it's a couple pages. First things first, I feel like we had a pretty decent weekend. The boys had a great visit with their mom and aside from a few hiccups with Gavin related behaviors, it seems like a very positive experience. That's awesome. They adjusted to being home in short order and picked up life where they'd left off before their trip. We spent some time working on the house. The boys want to bolster our security, as do I, because of all the recent shootings in our neighborhood. Just the other night, there were three woman shot while they were sitting on their front porch. I heard the shots but didn't…

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September 27, 2020
Read more about the article My Son was Rushed to the Hospital: An Important Update
Gavin / Major Update / My thoughts

My Son was Rushed to the Hospital: An Important Update

Alright folks, first of all, I want to thank everyone for all the thoughts and prayers over the last 24 hours. We were really scared and all truly appreciate it. Before I call it a night, I wanted to update everyone as too what happened. My brain is absolutely fried, and I'm exhausted from a long, emotional 24 hours, so I need to keep this short and sweet. We started Gavin back on Clozapine Friday night, after a discussion with his doctor. It was decided that Gavin had reached a point where we didn't have any choice. He was put back on 300mg, and we were told to give it to him at night because it will help him to sleep through the night. He'd only been off the Clozapine…

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April 14, 2019
Read more about the article Massive update on my wife
Lizze / Major Update / My thoughts

Massive update on my wife

It's been a really long time since I published an update on Lizze. There really isn't a reason I haven't written much about her specifically, I just don't like to step on her toes cause she has her own blog to share her story. Every once in awhile, I think it's important to shine the light on her because she's a big part of our family. Lizze lives every single day of her life in pain. Sometimes the pain is manageable and other times, like the last week or so, it's agonizing. Lizze was diagnosed with fibromyalgia a long time ago. She's dealing with a particularly aggressive form of fibromyalgia. Aggressive isn't the right word. Severe is a better, more accurate choice. Like all things, fibromyalgia hits everyone differently. Some…

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December 9, 2017
Read more about the article Elliott needed a chest x-ray this morning
Elliott / Major Update / My thoughts

Elliott needed a chest x-ray this morning

Elliott's appointment took about two hours and he did about as well as he does at any doctors appointment. Elliott has never been comfortable at the doctors, any doctor for that matter. He gets extremely anxious and that using leads to a meltdown, or at the very least, tears. In a nutshell, his appointment when well. We're waiting for the results of the chest x-ray that is ruling out walking pneumonia and that's about it. He doesn't have strep and shows zero signs of being sick other than running the fever. The only reason they did the chest x-ray is because he's had walking pneumonia on a few occasions in the past. It's looking like we are moving in the direction of what Emmett's dealing with, a rare fever disorder.…

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October 27, 2017
Read more about the article Major Update
Major Update / My thoughts

Major Update

As I've said before, the decision as to whether or not we should push our trip back was between us and the wish organization. I also mentioned that we were going to wait until the end of this week to make a final decision on anything. I spoke with the organization this morning and the place we're staying is back up and running. We know that Disney is up and running already. What we didn't know is whether or not the other places are going to be in service. That is being looked into this morning, and assuming everything checks out, we will be good to go for the end of this month. Lizze and I are good with this. We had our concerns, we discussed them with the people…

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September 13, 2017
Read more about the article A MAJOR Gavin update
Gavin / Major Update

A MAJOR Gavin update

It's been almost five days since we lowered Gavin's Clozapine to 500 mg/day. Aside from Gavin incessantly talking, I haven't noticed any changes in his behaviors. His Schizophrenic symptoms haven't changed for better or worse. The only things we've been hearing about are body aches and vision problems, but those shouldn't have enough anything to do with this particular change in medication. To be honest, I'd be comfortable dropping him down again before we leave for Florida. We're still going to wait but I don't foresee there being any changes in anything once we do. As I'm thinking about this, the only other concern we have taken place prior to any of these changes. On Tuesday night, Gavin briefed Dr Pattie and I on his latest mission. According to Gavin,…

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September 2, 2017
Read more about the article Major Update: All about Gavin 
Gavin / Major Update

Major Update: All about Gavin 

We have a lot of catching up to do in regards to Gavin. Now that the server is up and running, I can finally do that. Gavin had his immunologist appointment yesterday. He did really well on the trip up and back. Sometimes he struggles in the car but he did great. We met with Gavin's immunologist and discussed everything that was going on with him at length. What we were able to confirm was that we have no idea what's causing the levels across all cell lines to go up and down. We can assume it's the Clozapine but there's no way to know for sure unless we remove it, and that's a huge deal. His levels have come up out of the more critical levels, but they're still…

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August 12, 2017