Lizze Archives - Page 6 of 10

Massive update on my wife

It's been a really long time since I published an update on Lizze. There really isn't a reason I haven't written much about her specifically, I just don't like to step on her toes cause she has her own blog to share her story. Every once in awhile, I think it's important to shine the light on her because she's a big part of our family. Lizze lives every single day of her life in pain. Sometimes the pain is manageable and other times, like the last week or so, it's agonizing. Lizze was diagnosed with fibromyalgia a long time ago. She's dealing with a particularly aggressive form of fibromyalgia. Aggressive isn't the right word. Severe is a better, more accurate choice. Like all things, fibromyalgia hits everyone differently. Some…

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December 9, 2017

Cleveland Clinic / Fibromyalgia / Lizze / My thoughts

Well shit, that didn’t go as planned

It's been a really long day and it's only 3:30 PM. I'm actually feeling much better today and want to give a big thanks to the inlaws for chillin' with the kids while I took Lizze to her doctor at the Cleveland Clinic. I have to say, the traffic was good and we made excellent time. ☺ Unfortunately, when we arrived at the doctors office, Lizze was informed that her appointment was at the other location. Considering we didn't even know there was another location, it was a bit frustrating. Apparently, her doctor has begun seeing patients in a second location as well. In all the years Lizze has been a patient, the appointments have always been in the same place. Lizze's appointment ended up being in this new location,…

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November 10, 2017

Lizze / My thoughts

Sometimes the stress can be too much

The stress of everything is getting to Lizze and I. We had a disagreement that got a little heated and it didn't have to be that way. Lizze and I are fine, but we never resolved anything and it wasn't going to happen until both cleared our heads. It's totally normal to have disagreements. Sometimes, as Autism parents, the stress of everything weighs so heavy that it influences our reactions to things. Something that Lizze is really good at is knowing when to end a conversation because it's not going anywhere. That's so hard for me to do because I need resolution. Knowing when to walk away is really important and that's something I need to work on. Thankfully, I have someone to help with that. ☺ 💙

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October 31, 2017

Lizze / My thoughts

Lizze isn’t doing so well right now

Lizze is having a really rough time right now. If you follow our story, you might recall that Lizze has migraines almost every single day. They range from I can breathe through this to someone fucking kill me. The last day or so, it's been really bad and while she's pushed though most of the day, it's heartbreaking to see her in so much pain. She's never really responded to any conventional treatment and even underwent botox, in a desperate attempt to find some relief. Unfortunately, she's in the minority who react badly to botox. By badly, I'm referring to the side effect that can make her migraines significantly worse. While we were with Gavin's neurologist last week, he could see how much pain Lizze was in and was asking…

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September 17, 2017

Lizze / My thoughts

How we ended a very stressful day

It's been a really long day and I haven't written much because I'm really tired. It's been an emotional roller-coaster today with all things Gavin. Rather than focus on that, I wanted to share how our day ended instead. After getting the boys to finally go to bed, Lizze and I settled in to watch a movie. I've been dying to see Wonder Woman but I couldn't get Lizze to go see it. It didn't interest her in the slightest, so I didn't push for it. It was released on Google Play yesterday and I've had it pre-ordered for awhile. Lizze begrudgingly agreed to watch it with me last night. She wasn't super excited about watching it but she was doing it for me. ☺ After about fifteen minutes, the…

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August 30, 2017

Lizze / My thoughts

I hate last minute schedule changes

This afternoon has turned into a giant cluster fuck. It's not a huge deal but it is stressful to have constant changes made to our schedule. We were getting ready to take Lizze to her appointment (she doesn't drive) and I suddenly realized that Gavin's IVIG infusion was still underway. He had too much time left and there was no way we could ask him tonfinish his infusion in the car. The only choice to cancel the first appointment and reschedule the second. I hate canceling or rescheduling at the last minute, but I goofed up in this one. I should have waited until this evening to do Gavin's infusion. Regardless, it's not a huge deal. Lizze is rescheduled for tomorrow afternoon and Gavin will finish his infusion in the…

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August 7, 2017

General Update / Lizze

An important update

I want to do a general update, and this time focus on Lizze. It's been awhile since I've really talked much about how Lizze is doing, so I thought I should correct that. As you may or may not remember, Lizze was taking a series of three, very intensive, outpatient therapy-type classes. These are designed for people with PTSD, Bipolar Disorder, and Borderline Personality Disorder. Lizze has both Biolpolar and PTSD. These classes have been enormously beneficial for her. Unfortunately, after all three classes were approved, and she was halfway through the second one, insurance decided to no longer cover this therapy. They didn't provide a reason other than it wasn't beneficial. The staff at the Cleveland Clinic/Akron General fought to get this overturned but were met with the impervious…

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July 30, 2017

Bad News / Lizze / My thoughts

We received some bad news

In what seems like a cruel twist of fate, insurance has decided to discontinue coverage for Lizze's outpatient therapy classes. These are a series of three different classes that span a total of about six months or so. They are designed to help people dealing with things like PTSD, Bipolar Disorder, and more extreme challenges like Borderline Personality Disorder. Before she was able to begin the very first class earlier this year, insurance had to approve everything, and they did. They agreed to cover all three classes and so we proceeded with the therapy. She made it through the first class, and about half of the second one when out of nowhere, insurance pulled the plug and the funding. We've been unable to secure a reason for this sudden and…

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July 18, 2017