Gavin's been undergoing his IVIG infusion for over five hours now and it's still not done. This is not a good thing because he's getting extremely anxious and understandably so. This usually comes down to needle placement and because there's only so many locations in his belly to place both needles and because there have been roughly 5,826 total needle sticks into his belly thus far, scar tissue is a problem. I suspect scar tissue is the leading cause of today's complications. As a result, what should take roughly an hour is dragging out into almost six hours. There's nothing we can do but let it run its course. The IVIG Infusions are absolutely crucial to Gavin's survival. We can't just write it off because it's taking too long. Hopefully,…

Once again, Gavin has been shorted supplies for his IVIG infusions. As it stands, he doesn't have enough left to do his next infusion on Friday. Rather than simply take care of it for him, I asked him to put a reminder on his tablet to go through his supplies and figure out exactly what's missing. Once he figures that out, he'll report to me and I'll call the hospital and put the order in. It's so important that Gavin be as involved in his health care as possible. He can't make make his own medical decisions for obvious reasons but we want him to play as big a role as he's capable of being. Getting him to utilize his tablet for something other than games is important as well.…