Gavin is officially out of his IVIG medication and he's not been able to do his IVIG infusion today as a result. I've spoken with the home care pharmacy that's responsible for delivering these life saving medications and they're out for delivery today. That's good to hear, it really is.. That being said, why do we have to cut things so close? Why not provide an overlap because things happen and an overlap would prevent him from missing his infusions as the result of a shipping delay. That makes sense to me.. At the very least, it would alleviate the anxiety sorrounding this time of month when his supplies are depleted, he needs his infusion and the delivery hasn't arrived.. Life is stressful enough and this would make it a…

I feel like I slept pretty okay-ish last night. I went walking first thing this morning while Gavin was doing his IVIG infusion. We hit an unexpected snag in today's plans. The idea was to walk and then take Gavin to get his bloodwork done.. Unfortunately, the lab was closed today. I guess I wouldn't have thought they would be closed but they were. This isn't a huge deal but it cuts us closer to the deadline for getting his labs done. His Clozapine runs out on Wednesday morning and son we absolutely must get them done tomorrow. It's already going to be a busy day because of Gavin's appointment with neurology but we're going to have to make it work. I hate when we cut things this close with…

It's been a rough morning for Gavin. I didn't see too much of him until after I got home from taking the boys to school and getting my morning walk done on the way home. When I arrived home, Lizze was watching him get his IVIG infusion ready. I could see from the moment I walked in that he was not in a good place. Sure he was pleasant and polite as always but I could see he was struggling to stay on the road. He got his infusion going and returned to his bedroom sanctuary to wait the process out. Before long, he was back downstairs because one of the infusion sites was leaking a tiny bit. Gavin has historically not done well with problems arising during one of…

Gavin did a really good job this morning in regards to his IVIG infusion. He got up early and put it together, woke me up in order to check it and then completed the procedure without any help. For me personally, that's a great way to start the week because so often he struggles with these anymore and a bad infusion sets a tone for the week. Great job Gavin.. Keep up the hard work and keep moving forward.