Read more about the article Gavin just finished a very painful infusion
Bad Reaction / Gavin / Immunology / IVIG Infusion / My thoughts

Gavin just finished a very painful infusion

Poor Gavin had a really rough IVIG infusion this evening. Everything went as it normally does but for some reason it was really painful. Every once in awhile, Gavin's infusion will be incredibly painful. I haven't a clue as to why this is, but it could be related to something as simple as needle placement. Maybe the needles were sitting funny or for some reason, the medication burned as it was going in.. Thankfully it's over with and the pain has subsided but I really hate when any of my kids are in pain. 🙁

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August 28, 2017
Read more about the article So here’s how Gavin’s doing
Bad Reaction / Gavin / IVIG Infusion / My thoughts

So here’s how Gavin’s doing

Gavin seems to be feeling okay today. That's obviously good news, because he had a rough night, as I said earlier. He's currently sleeping, but that's likely just his morning meds.  We're taking it easy this afternoon but plan on walking as the sun becomes a little more skin friendly.  Hopefully, Gavin will wake up still feeling okay, and will be up to going to the park. I don't like to push him too hard, because his body is inherently unstable. He's been doing pretty good for the last couple of years, but it only takes one time. 

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July 18, 2017
Read more about the article Gavin had a bad reaction to his #IVIG infusion
Bad Reaction / Gavin / IVIG Infusion

Gavin had a bad reaction to his #IVIG infusion

Gavin gets his IVIG infusion this morning, but I'm a tiny bit concerned. When he had his last infusion on Friday or Saturday, he got sick afterwards. He began not feeling well about an hour after it was done.  He soon became sick to his stomach and needed his anti-nausea medication, in order to make it through the night.  Thankfully, he's feeling better today but he had a rough go of it.  I don't know why he sometimes has bad side effects but not all the time. I'm grateful it doesn't always happen but I wish I could nail this down because if I knew why, I could try to fix it.  Unfortunately, it may just be a Gavin thing and there's no rhyme or reason to it. Hopefully, today's…

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July 9, 2017