3 tips guaranteed to make you a better #Autism parent
Are you new to Autism Parenting? Here are 3 tips that will help you become the best #Autism Parent you can be.
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August 4, 2018
Do I have less patience now?
Gavin had therapy tonight and one of the things that I mentioned to the therapist is that I just don't have patience for Gavin anymore. We discussed that briefly before something occurred to me. Perhaps this is a philosophical question but it's something I think Special Needs parents should keep in mind as their kids get older and perhaps more challenging. First of all, let's be crystal clear. I'm as far from perfect as any one person can be. I'm human and I have very human limits. That being said, the people who know me in real life, have been saying forever that I have the patience of a Saint, especially when it comes to Gavin. In all fairness to myself, I did have a seemingly endless supply of patience.…
July 26, 2018
How a tiny brown bat helped me teach my kids a valuable life lesson
We had a pretty good day in our little corner of the world. The boys went to a cookout with Lizze's parents, Lizze rested because of a really bad migraine and I hung out with Gavin. This whole thing with Gavin sucks but we're making the best of it. In an effort to make Gavin's situation suck a little less, I put together a pizza and movie night for the family. We watched Ready Player One and had Marcos Pizza. The movie was probably among the best I've ever seen. The kids loved it and can't wait to watch it again. We had a nice quiet evening at home and made the best the situation in which we find ourselves. You always need to try and make the best of…
July 9, 2018
The #1 thing all #Autism Parents worry about and it’s not what you think
Over the last decade, I've put a great deal of focus on the fact that all people touch by Autism are unique and not cookie cutter copies of each other. I also stressed the same applies to Autism families as well because no two are exactly the same. Both of these statements are true and sadly, too many people still don't grasp this concept. Stereotypes and assumptions still abound when it comes to anything Autism related. This post isn't about reiterating the same old facts all over again. Instead, this post is about the number the one worry that all Autism parents share. Aside from loving our kids with Autism unconditionally and without limits, this is one thing that in my experience is absolutely universal. One might assume that we…
July 8, 2018
Common Variable Immunodeficiency / GAMMAGARD / Gavin / Immunology / Inspirational Posts / My thoughts
The #1 reason I’m so angry tonight
I'm trying to do many things right now and one of them is fight off my anger. I think one of the reasons I do as well as I do under all this constant stress is that I don't get angry. I really don't get angry, and if I do, I don't hold onto the anger. Being angry is like drinking poison and expecting it to effect someone else. It's destructive and has little place in my life. Having said that, I'm fucking angry right now. We've been dealing with this GAMMAGARD shortage for over three weeks and Gavin's last IVIG infusion was on June 18th. Today marks the fifth IVIG infusion in a row that he's missed because we can't get his fucking medication. Gavin has Common Variable Immunodeficiency…
July 6, 2018
The worst thing that 1 #Autism parent can do to another
I've been a voice in the Autism community for almost a decade. People have gravitated to me because I say what they're thinking without them having to say it. I don't judge those with differing opinions and I never force my views on anyone else. I love taking the pulse of the community by publishing polls designed to help people get a better understanding of what others in the community are experiencing. Someone had responded to one of my many polls by telling me that it was an awful question for me to ask. That awful question that was asked was Do you ever miss your life before Autism? Why shame me for asking it or others for answering it? Feel free to answer the poll below. [totalpoll id="46574"] The…
June 25, 2018
The #1 most important thing we need to balance as #Autism parents and it’s not what you think
One of the more difficult things an Autism family can deal with is going out in public. This has nothing to do with shame or being embarrassed. It has to do with not expecting more from a child then they are capable of. Kids and adults with Autism can often struggle from things like Sensory Processing Disorder and anxiety. These can make going anywhere, very difficult for them. As parents, we don't want to put our kids through anymore then we have to and so many times, we avoid going places. While that tends to make life easier in some ways, it makes it harder in others. I've said this a million times but when you're an Autism parent, problem solving is often very complicated. It's not easy to find…
June 21, 2018
#Autism exploded all over our refrigerator
I'm so used to being an Autism parent that very little surprises me anymore. There are times however, that one of my kids does something that is so obviously Autism related in nature, that I can't help but stop and smile. ☺ Yesterday, I made a quick trip to the grocery store and Emmett helped put the groceries away when I got home. Putting the groceries away turned into reorganizing the refrigerator in a way that made sense to him. I couldn't help but smile and I snapped a picture and thought I would share.. ☺
June 16, 2018
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