.#Autism Awareness Month and The Invisible Line

Autism Awareness month is upon us and I wanted to start things off with a few important reminders.  The Autism community consists of people with many different opinions, experiences, beliefs and approaches to life. Many of these differences can be polarizing in nature and often seems to draw a line in the sand.  This invisible line is a problem, and has been for a very long time, the biggest of which is that it divides us. It makes our efforts to promote awareness, acceptance and understanding, ineffective at best.  As we enter into Autism Awareness Month 2017, we have the ability to make a real difference. We can rise above the things we don't agree on and even learn from each others experiences.  Please don't let our differences divide us.…

4 Comments

How many #Autism Parents are guilty of this? 

One of the things I've really tried to instill in the families that follow our story, is that no matter what you may expect from yourself, at the end of the day you're only human. It's important to remember this because as Autism parents, we are often pushed to the brink of insanity and our limits are continuously being tested. As part of this whole being human thing, we can often feel emotions that may cause us to feel guilt but here's the thing. We're human and we're going to experience a plethora of emotion when it comes to our kids on the Autism Spectrum. I don't think a day has gone by where I haven't experienced things like frustration, exhaustion, anger, resentment, heartache, pain and being completely overwhelmed. I…

1 Comment

Why we should put some focus on the parents this #Autism Awareness month

With Autism Awareness month just around the corner, there are a few things I would like to see happen this time around.  Obviously, there needs to be a focus on people who are Autistic. That should go without saying and even in 2017, that's sorely lacking.  However, one of the things that I believe needs a larger focus, is the parents raising these kids with Autism. I realize that most parents of kids with Autism are neuro-typical, but we/they play an absolutely critical role in the lives and futures of our children with Autism.  Without resources, funding and support, we can't be what our kids need. Without support, we can give our kids what they need to reach their full potential.  Speaking for myself, I'm very, very human. There's only…

0 Comments

Why I’ve had a change of heart about #Autism Awareness month

As one ages through life, one tends to gain wisdom and insight that they were previously lacking. What I mean by wisdom is learning from one's past and gaining insights into different ways of thinking. I'm absolutely no exception to this, and I want to share something that I've recently had a change of heart about. We all know that April is Autism Awareness month. This is the one time of year where the world's eyes and ears are pointed in our direction (the Autism community). In the past, I've taken a pretty hardline stance on the Autism Speaks Light it up Blue campaign. I've been very vocal about how I feel that buying a blue light bulb is more about padding the bottom line than raising Autism Awareness. While…

2 Comments

Do you ever have one of these days? 

If you're a special needs parent, struggling to navigate this challenging life you been given, you are not alone. I've had a particularly challenging day with my three kids with Autism, so I get it.  Today was one of those days where I could feel myself cracking at the seams and I had to dig down deep, just to make it through.  Our day was plagued by sensory issues and it resulted in both my youngest staying home from school today. It was less than ideal but it was the right thing to do.  I did take Emmett to occupational therapy because obviously he needs it. While we were there, I showed his OT the video of Emmett struggling with his shoes and socks before going to a movie. There…

0 Comments

Sensory Processing Disorder: Unless you live it, you probably won’t get it

This morning was the stuff of nightmares. It's picture day at school, and both Elliott and Emmett are dressed up, looking quite spiffy. Both were excited about pictures and very much looking forward to going to school. Then it became time for shoes and socks. Emmett went into it with a fantastic can-do attitude, as did Lizze and I. Unfortunately, all the great attitude, positive thoughts and hopeful outlooks in the world, can't seem to counter the nightmare that is sensory processing disorder. We worked with Emmett for almost one hour and forty-five minutes but were unable to work through it. Emmett kept wanting to try different options, but even flip-flops were feeling too funny to tolerate. Poor Emmett was so upset that he was going to miss pictures and…

6 Comments

The heartbreaking reality of sensory processing disorder (video) 

I've been talking about sensory issues in regards to my kids for years. The story always seems to revolve around shoes, socks, and school, especially in Emmett's case. Almost every single morning, we spend upwards of an hour or more, trying to help Emmett tolerate his shoes and socks. There are times that we succeed in overcoming these obstacles and there are days in which we don't even come close. The examples I've given have mostly revolved around Emmett missing school because he can't tolerate his shoes and socks. No matter how many times I've tried to explain that Emmett's not trying to get out of going to school, there's always that doubt in people's mind because it seems like getting to stay home is his ultimate goal. As I've…

4 Comments