Read more about the article I feel like shit this morning but hey I’m alive
General Medical Stuff / My thoughts

I feel like shit this morning but hey I’m alive

So I got about zero sleep last night. I couldn't get comfortable and as the morning drew closer, the pain began to return. I'm in the waiting room at my doctor's office right now. I arrived early because I'm hoping to God that I can get in early. I feel nauseated and I just want to go to bed. I'm also not looking forward to her removing the dressing because Lizze and I realized that the nurse last night didn't center the dressing. The tape at the bottom is really uncomfortably close to the wound and it's gonna hurt like a bitch when my doctor removes it. Anyway, this whole thing is weird for me because I can't see it and have to rely on pictures or someone else to…

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December 18, 2017
Gavin / General Medical Stuff / My thoughts

Good News, but I’m cautiously optimistic 

I wanted to share a bit of positive news tonight before I go to bed. This will be quick because I'm emotionally and physically exhausted.  The doctor called with Gavin's lab results, and things have improved.  His platelets are at 160, his WBC count is 4.4, and his Neutrophil is 2.4. These are all movements in the right direction and that's good. The problem/concern is that we have no idea why they are rising, or why they fell in the first place.  For that matter, we don't know what to expect as we move forward. Until we do, I feel like we're flying blind and that's scary. His numbers went down so fast, it was literally overnight.  At the moment, I'm counting my blessings and will take things one day…

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August 7, 2017
Gavin / General Medical Stuff / My thoughts

An important Gavin update 

​There are too many thing to talk about with Gavin anymore, but I will briefly touch on how he's doing overall.  Gavin's such a good kid. He tries so hard at everything in life and unfortunately, he's struggling. We're seeing more and more regression lately. Things like memory (especially short term), simple tasks and even walking have become more challenging for him.  He's very easily confused and that frustrates him a great deal.   On the positive side, his actual behavior is still a shining example for his little brothers. He caring, kind and gentle. He worries about everyone and always wants to help. Honestly, Lizze and I couldn't be prouder.  ☺  Everything else is par for the course when it comes to the things that make up Gavin. They're…

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November 30, 2016
Elliott / Emmett John / General Medical Stuff

DON’T MISS: Important Update on Elliott and Emmett

It's time to play a little game called catch up. When we met with Dr. Reynolds last week, we also made some decisions about Elliott and Emmett. Unfortunately, I got tunnel vision with all that was happening to Gavin that I never got around to this.  After speaking with Dr. Reynolds about both Elliott and Emmett, it was decided that we would be removing all of the medications, with the exception of their ADHD meds. There were several reasons for this but the main one is that the medications don't appear to be doing anything.  Over the next 15 days, we will be weaning them off of these meds as per Dr. Reynolds instructions. I don't expect to see any negative changes in behaviors as a result. There is a very…

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November 20, 2016
Clozapine / Gavin / General Medical Stuff

Gavin’s really struggling with these side effects and it’s heartbreaking 

We've got to figure something out with these bladder issues because they are now constant and very rarely ever let up on him. Poor Gavin keeps apologizing for having to go to the bathroom over and over and over again.  I keep telling him that it's not his fault and he needn't apologize for it because there's nothing to apologize for.   Unfortunately, I wasn't able to leave Gavin behind when I went to get the kids from school because Lizze has class today and would likely have to leave before I got back.  We've been here ten minutes and Gavin's already run to the bathroom twice, as well as paced the alley.  I'm not getting to the school super early to write because I don't want him to have…

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September 28, 2016
Read more about the article This morning was all about the bloodwork
Blood Work / Gavin / General Medical Stuff

This morning was all about the bloodwork

After taking the Elliott to school this morning, Gavin and I had to both have bloodwork done.  Gavin's bloodwork was related to his meds and other various health issues. Mine was just a followup cholesterol check before my next check up in a couple weeks.   Both of us had to fast and by the time we had the blood drawn, we'd fasted for 14+ hours. That really sucked but you gotta do what you gotta do.   I'm excited to get my new numbers because my cholesterol went from 217 down to 160 per my last doctor's visit.  I'm hoping it's even lower now.  ☺️ Gavin is having his cholesterol, Lithium and complete CBC checked from this blood draw. He needs this in order to continue receiving his next…

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September 16, 2016