This is what we learned at The Cole Eye Institute today

It's been an exhausting day full of walking, waiting and driving. Gavin's final appointment of the day was at The Cole Eye Institute this afternoon. The appointment went well but it took forever. I honestly felt like we had been forgotten. The good news is that Gavin's eye checked out and they are basically perfect. The bad news is that we still don't know for sure why he's having visual blackouts. The current theory is that these blackouts are caused by migraines. Everything else has been looked at and aside from the pending EEG results, we've eliminated every other possibility. Until we find anything else, we're going with migraines for now. Appointments like these are maddening because all we want are answers and all we end up getting are more…

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Gavin’s worsening vision issues

Gavin took a bath this afternoon. That's nothing unusual, in and of itself. What is notable however, is what happened after his bath and I'm not sure how worried I should be. While he was getting himself dressed, he looked in the mirror, which is high enough that it only reflects his head, neck and chest. He explained that while looking at his reflection in the mirror, he saw white geometric shapes, separated by black lines. He was unable to answer any questions because he didn't know how to answer them. I asked him to draw a picture of what he's talking about, because without us understanding what he's experiencing, it's much harder to help him. His drawing however, doesn't help is as much as I was hoping it would.…

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