Gavin Archives - Page 87 of 113

Sometimes it’s really hard to live with my special needs child

Gavin was in rare form today. I love him and would do anything for him but there are times it's just really hard to live with him. He would not stop talking the entire day. It felt like he just kept going on and on, without any reprieve. Lizze and I got to the point where we had to simply say stop talking. Even that didn't work because he'd be right back at it a few minutes later. He went on about his missions, his games and it was extremely repetitive. The weird part is that everytime he would tell us something, it was like he was telling us for the first time. That's not uncommon for him to get like this when he's manic. He did the same thing…

0 Comments

September 8, 2016

Bad news about Gavin and the tough decisions ahead

We met with Dr. Pattie tonight, for Tuesday night family therapy. I'm trying to help you out by specifically mentioning Tuesday because if you're anything like me, after the holiday weekend, you don't even know what day it is. The main topic tonight was Gavin. Even if we had other things to talk about tonight, which we did, it wouldn't matter because Gavin mission debriefed the shit out of us. Gavin wanted to catch Dr. Pattie up on all she's missed over the passed week or so and it took him at least 30 minutes for that download to complete. It's been hours now and I don't think any one of us has been able to process even a tiny bit of what we heard. Frankly, I don't even know…

0 Comments

September 7, 2016

Gavin / IVIG Infusion

Gavin’s IVIG infusion went pretty well and that’s a pleasant change

Gavin's Monday IVIG infusion went pretty well. There weren't any side effects, other than leaving a rather nasty sore at one of the needle sites. It sucks because it's painful but it's not a major issue. While it's not anything major, it takes forever to heal and I'm not sure what that's all about. Gavin's currently sleeping and hasn't had any issues like he's gotten after his infusions lately. No headaches or nausea tonight and that means he just might sleep through the night. That's something that I'm really grateful for.. ☺

0 Comments

September 6, 2016

Autism Parenting Woes / Gavin / IVIG Infusion

I don’t know what the right thing to do is

I'm a little hesitant to give Gavin his IVIG infusion today for a couple reasons. First of all, he's not been feeling well this weekend. He's doing okay now and isn't complaining of anything but it seems to come and go, so there's no telling if or when he'll be under the weather again. Secondly, even on a good day, he's been suffering side effects from these infusions and they've been pretty rough. With him already being under the weather, I worry that the infusion may cause him to get sick. There are times we put it off for a day but that's not something we like to do very often at all. Plus, Gavin's very focused on his routine and deviating from that stresses him out. I'm…

0 Comments

September 5, 2016

Gavin / General Update

Gavin continues to get worse

Pretty much all Gavin talks about anymore are his missions. On occasion he mixes things up by tossing in some tidbits about his latest tablet game. I'm so burnt out from hearing this stuff. I can't take anymore of it right now. Not only is it a constant reminder of where he's at right now but it's just too much to process. Right now everything centers around My Little Pony and the Equestrian universe. Gavin's talking about having to infuse his blood into one of the ponies to cure her of being poisoned by the radioactive moon of canus lunus. All this time and I still don't know what the fuck that even is. We have eight more days until he's back at the psychiatrist's office for an evaluation. I…

0 Comments

September 4, 2016

Gavin / Medication Management

A big change in the way we deal with medications

It's taken almost three months but I'm so excited that Gavin's medications have become so much easier to deal with. Gavin's on quite a few medications and has been for most of his life. Dispensing them has always been a huge pain in the ass because there are so many. It was pretty easy to make mistakes, especially if we were really tired. We recently switched pharmacies and are now taking advantage of a free service that does what you see below. Gavin takes medications every morning and at bedtime. Rather than manually sorting and dispensing seven different medications in the morning and eight at bedtime, all we have to do is tear off one of these little packets. The above is a picture of his morning meds,…

16 Comments

September 4, 2016

Gavin / My thoughts

I know something has to change but I feel bad doing it

Everyday I arrive at the school to pick up the boys. I get there at 2pm because that's been the routine and it gives me some peace and quiet for an hour. Everyday Gavin insists on coming with me. He just sits in the passenger seat, listening to his music through his headphones. The other thing he does is get up, buzz the front door of the school and use the bathroom. He does this multiple times in the course of one hour. If he doesn't do this, he sits next to me doing the potty dance. The potty dance is something that drives me crazy. I know it's not his fault but it just bothers me for some reason. We all have our little quirks. I'm to the…

0 Comments

September 2, 2016

Gavin / Major Update / My thoughts

A massive and important update on the current state of Gavin’s mental health care

Disclaimer: I'm venting/ranting about the current debacle that is Gavin's mental healthcare. I'm really frustrated, angry and overwhelmed by all of this because there's so much at stake. When you read this, keep in mind that I'm experiencing all these emotions and this is my way of sharing our story but also processing all this as well. I heard back from the nurse at Gavin's psychiatrist's office this afternoon and we had respectful but totally unproductive conversation. This was one of those conversations where I'm not sure if I'm more frustrated now than I was before but I think I am. Yeah, I'm pretty sure I'm more frustrated now. After listening to what happened, this is what the nurse told me: I wish I could tell you that things…

108 Comments

August 31, 2016