Gavin’s side effects are getting worse

After four days of being on his increased dose of Clozapine, it's pretty clear that his side effects are getting worse. The side effects in question revolve around the bladder control issues, extreme dry mouth and weird mouth movements (that could just be the result of dry mouth). Gavin and I had to get our blood work done this morning after dropping Elliott off at school. Emmett stayed home but that's another post. On the way home from bloodwork, we got an appointment for Emmett with the pediatrician. We got home, picked up Emmett and Lizze before heading right back to where we had our bloodwork done. In the afternoon, Gavin and I picked up Elliott from school before parking the car for the day. My point is, we made…

0 Comments

This morning was all about the bloodwork

After taking the Elliott to school this morning, Gavin and I had to both have bloodwork done.  Gavin's bloodwork was related to his meds and other various health issues. Mine was just a followup cholesterol check before my next check up in a couple weeks.   Both of us had to fast and by the time we had the blood drawn, we'd fasted for 14+ hours. That really sucked but you gotta do what you gotta do.   I'm excited to get my new numbers because my cholesterol went from 217 down to 160 per my last doctor's visit.  I'm hoping it's even lower now.  ☺️ Gavin is having his cholesterol, Lithium and complete CBC checked from this blood draw. He needs this in order to continue receiving his next…

0 Comments

I feel horrible because I can’t take hearing about his delusions and hallucinations anymore 

Gavin's been really sorta out there, even more so than normal. He's wanting to update us as to what's going on in his world, much more often than before. I don't have the ability to adequately express, just how exhausting, demoralizing, heartbreaking and overwhelming it is to constantly hear about all the things he's doing.  It's a constant reminder of just how bad the situation is and how powerless we are to help him. Anymore, I'm having to tell him that I can't listen right now. I don't know what else to do because I can't take any more. Lizze and I try to take turns listening, so the other gets a break but Gavin likes to tells us both at the same time. This has become what feels like…

0 Comments

Day 2 of 700mg of Clozapine 

Today is the second day that Gavin has been on 700mg of Clozapine per day. I'm going to be very honest and say that I'm not really seeing anything significant, one way or the other.   It's only been two days, so obviously we'll need more time to sorta flesh some of this stuff out.   Having said that, the positive thing is that we haven't seen any of his current side effects getting any worse.  For right now, I'll take that and run with it.   Next week we're going to make the second and final bump.  As of next Monday, he will begin taking 800mg of Clozapine per day, once again.   At this point, I'm just really grateful that this is going as smoothly as it has…

0 Comments

My brain is fried and my heart is broken

If there are any grammar errors, I'll fix them in the morning.  I can't keep my eyes open and I'm going to bed.   I'm going to try and sum up everything as best I can.  If this doesn't make sense to anyone, please know my brain is fried and my heart is broken. I'm doing the best I can at this point. Let me begin by saying that this was one of the most difficult appointments we've had in a very long time.  I'm really exhausted after today but I'll do my best to have this make sense. I also spoke to both sets of grandparents prior to writing this because I wanted to bring them up to speed before they read about it here. With that said, here's…

14 Comments

A quick update on Gavin’s emergency appointment today

We got home a little while ago from Gavin's appointment, as well as picking up the boys at school.  The appointment went well in the sense we only had to wait about 30 minute to be seen but that's where the good news ends. Gavin's in much worse shape than we thought and we've formulated a plan of attack.  Before I talk about this though, I need to process everything a little bit and reach out to family first. I'll explain everything later on today but right now, my heads all jumbled and I need some time to myself..  Thank you for your patience, support and understanding. 

0 Comments

We could use some thoughts, prayers or positive energies for Gavin today

Today's a really big day for us. There's a couple of reasons but only one that really matters. You see, today we finally get Gavin into the psychiatrist and figure out exactly what needs to be done to help him.   Gavin's been in a psychotic break for over three months now and I'm not sure what we can do about it.   What I know for sure is that there are zero good solutions for this and some are very dangerous. The whole reason for today's appointment is to wade through the very limited options and find the best of all the bad ideas.  Aside from getting the boys to and from school tomorrow, this appointment is the only thing on the agenda because we have no idea where…

0 Comments

Things started to look very bad for Gavin until this happened 

I have to give props to Gavin today and here's why.   Lizze was powering through our many laundry baskets of clothes that needed to be folded, sorted and put away this afternoon. Each of the boys took their clothes and put them away.   Gavin apparently ran out of room in his main dresser and didn't know what to. I told him to empty out his whites drawer and move them to one of the drawers in the empty dresser that resides in his closet.   He didn't seem to like that idea because he was afraid he would forget that his socks and stuff would be in the dresser inside his closet and he wouldn't be able to find clean clothes.   Frankly, I don't know if that…

8 Comments