The reason Gavin was going today was to fix his front tooth. No one knows what happened but part of the face of his front tooth had been sheared off. Check out the what he had done..
I know this sounds really weird but Gavin seems to be doing better and worse all at the same time. Let me explain.
Lizze and I were talking about this last night because we were trying to figure out if anything had changed. Sometimes it's really tough to tell if anything changed. Here's where we stand for now
Today was really rough for Mr. Gavin. He can't ride in the car for very long at all, without feeling like he's going to have an accident. This is the worst it's ever been, by a long shot. I was able to get ahold of his prescribing doctor and we are to immediately drop him down to his previous dose, beginning Thursday (tomorrow) morning. This means we are back down to 600mg of Clozapine a day. We aren't going to stay there though. After running 600mg for seven days, we will begin to increase by 50mg per week for the next four weeks. The idea behind this is that perhaps if we bring him back down and then slowly bring him back up, the side effects might not be so…
We've got to figure something out with these bladder issues because they are now constant and very rarely ever let up on him. Poor Gavin keeps apologizing for having to go to the bathroom over and over and over again. I keep telling him that it's not his fault and he needn't apologize for it because there's nothing to apologize for. Unfortunately, I wasn't able to leave Gavin behind when I went to get the kids from school because Lizze has class today and would likely have to leave before I got back. We've been here ten minutes and Gavin's already run to the bathroom twice, as well as paced the alley. I'm not getting to the school super early to write because I don't want him to have…
This morning sucked because I'm exhausted and it took all I could do to drag myself out of bed. The boys however, did really well and I'm so proud. Despite being death warmed over, Gavin motivated me to hit the track once again today. Gavin of course, kicked ass again. The walk felt really good and I'm really glad I didn't give up on it..
Gavin is very, very, very black and white in his thinking. We had to work very hard to help Gavin understand basic safety concepts like don't talk to strangers. He took that lesson to heart and to the extreme. For the most part, Gavin will not talk to strangers. This is good but he's got no concept of the grey areas. Here's a great example of what we're trying to work on and how Gavin totally owned it today. When Gavin and I walk the track in the morning, we walk by all the same people almost everyday. When we pass someone, we exchange pleasantries such as hello or good morning. People make it a point to wish Gavin a good morning and he almost rudely ignores them. He's not…
It's been a difficult couple of days for Gavin. It's safe to say that the increase in Clozapine has significantly increased the side effects he had begun suffering from about two years ago. Gavin's been struggling with what presents itself as bladder issues. He's constantly running back and forth to the bathroom, without having to actually go. He has the overwhelming urge to go and while sometimes he does indeed have to go, most of the time it's a false alarm. We're having many almost accidents and Gavin is absolutely miserable because he can't go anywhere without this interfering. This isn't a bladder infection because he's been tested and cleared many times. Unfortunately, this is a very rare but documented side effect of Clozapine and is apparently more prominent if…