Gavin's going to spend some time with his grandmother this afternoon. He wasn't able to spend the night last weekend and she wants to get him some lunch.  I think it's great.  They're going to be very cautious with things and make sure he doesn't overeat while he's there. I know Gavin's excited and truthfully, as terrible as it sounds, I really need a Gavin break.  He's such a sweet kid but the constant talking is slowly making me crazy today. 

Aside from the ridiculous wait times at the doctors, Gavin eye appointment when well. The good news is, Gavin's eyes check out perfectly healthy. The bad news is, we have no idea what's causing the vision blackouts.  Again, it's awesome that his eyes checked out. I'm certainly grateful for that, please don't misunderstand. At the same time, he's having problems with his vision that isn't related to his eyes.  WTF are we supposed to do with that? 

The boys are spending the night at their Grandparents house. We opted to keep Gavin home with us because they were going to a large family gathering, and we're avoiding Gavin being places like that until after we see the hematologist. Lizze and I had been looking forward to going, but that was before we learned about Gavin's newest medical problems. We talked about having him hang out with my parents but they were unavailable. We both wish things were different, but this could quite literally be a life or death thing. If his numbers dropped again, and we didn't know, it's could be very serious. We are choosing to error on the side of caution. Making these types of decisions, are not something that everyone will understand. Frankly, nobody…

I wanted to let everyone know a big thing happened while we were at Gavin's immunologist last week. I already mentioned how we discussed his labs and why his numbers keep dropping.  What I didn't tell you is that his immunologist cleared him for our trip to Florida. ☺  There's a great bit of detail that I'll save for another post, but the bottomline is, Gavin will be able to make the trip. That was something we were concerned about but also holding out hope that it would be okay.  Like I said, there's more to the story, but it's really late. I will say this.  There is a great deal of concern over Gavin's health, but his numbers, while still low, are out of the immediate crisis zone for…