Plans have changed for today. Lizze is not feeling well at all and I'll be taking Gavin to his appointment on my own. It sucks when this happens for a mutilated of reasons but Lizze is truly miserable and can't be there. It's not her fault and I know she's way more upset about than I am. Anyway, we have to adapt to things like this. Unfortunately, as a Special Needs family, very few things ever go as originally planned. We have to be able to adjust, be flexible and carry on despite the upheaval. I live in a house where no one likes change, especially last minute, unpredictable change. Personally, I don't usually struggle with change, so it's my job to help lead everyone else through the change challenge.

I shared yesterday about a mass that has been found inside Gavin's right forearm. You can get the background information by clicking here. We've been playing it cool with him because we didn't want him to worry needlessly or at least until we knew there was something to worry about. We didn't think that Gavin was really concerned about it because he brought it to our attention and that was pretty much it. Turns out he's more worried than we thought. He and I we're filling our 5 gallon water jugs for the week and he just sorta blurted out that he's worried it might be cancer. I was caught off guard and didn't really know what to say to that. He has an appointment in the morning to have…

I haven't had a chance to talk about this yet but I'm making the time to do so now. Gavin came home from his Grandparents house on Monday afternoon. Shortly after he got back, he brought to my attention that he found what he describes as a lump on his right forearm. I didn't think anything of it because Gavin freaks out about everything and most often there's nothing to worry about or it's all in his head. Lizze or I will always check things out anyway but we don't assume the worst, if that makes sense.. It was my turn to check things out and when I did, I calmly called Lizze over to look for herself. What I found on Gavin's arm is definitely concerning but I don't…

I slept like the dead last night. The boys got off to school and Lizze is at her Tuesday morning appointment. When she's done and there's a break in the weather, I'm going to try and go walking. At the moment, I'm finding all kinds of reasons not to go but I know I need to go anyway. At first glance, Gavin seems to be doing okay-ish. He's currently sleeping off his morning meds but the brief encounters I've had with him thus far have been better than yesterday. There's sort of a status quo when it comes to Gavin. It will change from time to time as his regression and health issues worsen. Whenever the dust settles, there's usually a new status quo. We seem to have returned to…

Gavin's IVIG infusion supplies arrived but didn't arrive until dinner time. I had Gavin immediately put his infusion together and get it going. While he was doing so, he began getting upset for the weirdest reason. Out of nowhere, he kept insisting that he never said there were missing supplies and definitely didn't say anything about 3 needle sets missing. This was a WTF kinda moment for us because I haven't a clue why he said this or why he was so upset. This was weird for a couple of reasons. The first reason was that he's the one who told us that he was missing supplies last week and told us he was missing 3 needle sets. Why he would even bring it up and then deny having said…