We got some amazing news from @myakrongeneral hospital this morning
We thought Gavin's incredibly important MRI was canceled due to insurance denying the claim. Here's what ultimately happened.
2 Comments
December 5, 2018
I wonder if this is why Gavin’s struggling so much with life right now
Gavin is Schizophrenic, as well as Autistic. He lives in a world of delusions and hallucinations.
December 2, 2018
We had the worst #meltdown in 5 or 6 years yesterday and we’re facing some heartbreaking decisions
We've actually had to put something back on the table that we'd previously taken off. That's revisiting whether or not Gavin would be better off in a group home type environment.
December 2, 2018
Why I’m so proud of Gavin today
As I've said many times, I'm trying to focus on the positive. It's not always easy to do but I've found that there is almost always something I can add to the positive column. Sometimes I have to look a bit harder than other times but there's usually something there. Today I'm needing to dig a bit deeper but I do have something positive to share with the rest of the class. I mentioned earlier that I had to take Gavin to get his blood work done. Historically, Gavin and blood work have been an absolute nightmare. Gavin wouldn't cooperate and would get very aggressive with the people trying to draw his blood. He would end up having to be restrained, security would show up and it never went well.…
November 28, 2018
What parent wants to see their child beat the shit out of themselves?
Self-injurious behavior is also very disruptive to the rest of the house. It's loud, violent and even though it's directed inward (meaning Gavin only physically hurts himself), it still hurts everyone else as well.
November 20, 2018
The struggles we face while raising a profoundly cognitively impaired adult son
I spoke recently about some of the struggles we face while raising a profoundly cognitively impaired adult son. This morning presented me with yet another issue that was directly related to how Gavin handles things. When we were at his gastro earlier this week, there were a few issues that came up as a result of Gavin's limited capacity and poor memory. None of these things are his fault and while they would still be frustrating at times, it's his reaction to being questioned that is really frustrating. You can read the recent post about this appointment and the initial frustrations by clicking here. It wasn't until this morning that the other complications presented themselves. Gavin's doctor had asked about how he was doing with his Ensures. Gavin drinks one…
November 16, 2018
Sometimes #Autism can be incredibly frustrating
It's been a very frustrating day. We had to totally adjust our plans because Elliott was home sick but we try very hard to roll with the punches. Autism and/or Special Needs parents have to be able to adapt because they living in a ery fluid environment. I was able to get Gavin to his appointment at Akron Children's Hospital but that ended up being frustrating as well. His gasteo is really nice and she's incredibly patient. ☺ I've spoken about this many times over the years but it bears repeating once again. Gavin is not a reliable source of information about anything, especially when it comes to his health. He struggles with memory issues and even basic comprehension. None of this is his fault but he very much muddies…
November 15, 2018
Here’s why Gavin is returning to @AkronChildrens hospital today
We have our second out of town appointment today. This time it's for Gavin and it's with gastroenterology at Akron Children's Hospital. This is really just a follow-up because there's some lingering questions surrounding the results of his endoscopy and colonoscopy. I don't think it's anything serious but we need to discuss it. There are also some medication related changes we need to figure out as well. Gavin will also need his blood work done today. This trip to Akron will bring us really close to the time I need to pick up the kids after school. I think we'll be fine but we won't be able to afford any significant hangups. I would love it if we can walk out of this appointment with good news. Truthfully, it doesn't…
November 14, 2018
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