Emmett John Archives - Page 45 of 85

Thank God for this little blessing

Mr. Emmett went to school today. We had some battles this morons with him but that's for another post. Right now, I want to focus on the fact that both Elliott and Emmett are physically is school today. With everything we have going on this morning, Emmett being home would have made things very difficult. The boys went to school in good moods and will hopefully arrive home in the same manner. While I'm still exhausted, I'm so grateful for how well the morning went.

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April 12, 2017

Emmett didn’t go to school today and it’s thrown our day off

Unfortunately, Emmett didn't go to school this morning. He's having an okay morning but it's obvious that something's isn't right. Elliott did really awesome this morning and we got off to school on time, even besting bus 38... ☺ Emmett being home has thrown our day off, but we've adjusted and have been able to move forward regardless. We also have a sick cat that had to get into the vet this morning. She's had explosive diarrhea and it wasn't getting better. The first appointment they had available was 9:30 AM this morning. Thankfully, she's going to be okay but we have quite a bit of medicine to force feed her for the next few days. Fun.....

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April 10, 2017

Emmett John / My thoughts / PFAPA

Emmett’s running another fever tonight because what’s 1 more missed day of school

Emmett spent the evening in the worst mood imaginable. He had a zero tolerance for everything. Several meltdowns were had in a relatively short period of time, with each one being as unpleasant as the next. I decided to check Emmett's temperature and son of a bitch, he's running a fever. It's low grade and just under 101°F, but it's another piece of the puzzle. Unfortunately, the school has a fever policy and anyone with a temperature of 99.5°F is sent home. They've bumped that up a little bit for Emmett but at the moment, he's still over the limit. We've been suspecting for a few days now that he was hitting a fever flare, but the demeanor and fever pretty much confirm it now. He has state testing tomorrow…

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April 10, 2017

Artwork / Emmett John / My thoughts

Impressive artwork by Emmett

The other day, Emmett brought this picture home from school. I guess he drew this during his free time and wanted to share it. I'm impressed with this because he drew a 3D block and then drew it pulled apart, in 3D. That takes some insight into how to manipulate 3D objects and then draw them based on what he sees in his head. ☺

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April 9, 2017

Emmett John / Feeding Problems / My thoughts / Sensory

Has anyone faced this bizarre #sensory processing issue before?

Recently, Emmett has been struggling a great deal more with eating. If you've followed our story for awhile, you might recall that we have an enormous challenge when it comes to Emmett and eating. He's extremely sensory oriented and struggles with things like food, clothes, noise and shitload of anxiety. The anxiety serves to make everything worse. Anyway, Emmett has a very small menu of foods he'll eat, and that makes it challenging to feed him. He's very sensitive to things like taste, smell, color, shape, packaging, presentation and imperfections. It's not uncommon for me to have to remake something a few times because something about it wasn't right. Recently, Emmett has begun saying things like, this doesn't taste right. The problem is, what doesn't taste right, happens to be…

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April 8, 2017

Childhood Disintegrative Disorder / Emmett John / Gavin / My thoughts / PFAPA

New health concerns for 2 of my kids with #Autism

I haven't had the energy to catch you up on a couple of things that are causing us to be concerned, in regards to the kids. I'll start with Emmett because we learned something new about his fever disorder, while we were at the immunologist the other day. She is the doctor that handles his fever disorder, as well as Gavin's Immunodeficiency, everyone's asthma and seasonal allergies. She also handles Elliott food allergies. When it comes to Emmett's fever disorder, we have been chasing this thing since he was roughly a year old. Fever cycles consist of many different and evolving symptoms. What we refer to as a flare up, presents with mouth sores, joints that are hot to the touch, massive mood swings and sometimes a fever. These symptoms…

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April 8, 2017

Elliott / Emmett John / Gallery / Gavin / My thoughts

Our day in pictures because I’m too tired to use words

It's been a really long day and I have quite a bit to share but I'm exhausted. I'm going to get you all caught up in the morning and explain how the boy's appointments went today. For now, I'll leave you with the photo gallery from our adventures in immunology and allergies...

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April 7, 2017

Elliott / Emmett John / My thoughts

2 things my #Autism family is struggling with right now

It's been an exhausting day. I managed to squeeze out five hours of sleep between last night and now. That was broken up into three tiny chunks and not all at once. That sorta kills the benefit. Emmett's been having nightmares again for the last couple of nights, and in true Autistic fashion, he's generalized the cause as being his bed. In other words, because he had a nightmare while in his own bed, he will always have nightmares if he's in his own bed. Generalization is one of the challenges Autism has brought into his young life and its tough to counter. He's so smart and logically I think he knows his bed has nothing to go with bad dreams, but emotionally he can't put those things together. It's…

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April 6, 2017