Read more about the article I was able to give Gavin his #Clozapine tonight
Clozapine / Gavin / My thoughts

I was able to give Gavin his #Clozapine tonight

We were able to get Gavin's Clozapine refilled today. I had to make a few calls but the script was ready for pickup at 7:30 PM tonight. That's definitely a step ahead of what it's been for the last few months. I'm not sure if the new process we are trying with the doctors office is responsible for this pleasant turn of events or if it was the new bloodwork order, with very specific instructions. Maybe the stars aligned and everyone simply did their jobs. I guess the only reason I can is because I'd like to repeat this every week. It's a huge relief when I don't have so battle to get his lab results sent and his script refilled. All that truly matters right now is that I'm…

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March 12, 2018
Read more about the article The number one source of stress in my life right now
Clozapine / Gavin / My thoughts

The number one source of stress in my life right now

I'm so incredibly frustrated today because for the millionth time, the pharmacy hasn't delivered or even filled Gavin's Clozapine prescription. I don't understand why this is so fucking complicated. Out of all the medications a pharmacy can fill, Clozapine is the most tightly controlled by a mile. One would think that they would have a procedure for filling it. My job is to make sure that Gavin's blood work is done once every seven days. The labs job is to fax the results to the pharmacy. The pharmacy must then fax the results to REMS. REMS will grant the pharmacy permission to release seven days worth of pills. This process repeats every single week and as long as everyone does their fucking job, we can continue to give Gavin his…

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March 6, 2018
Read more about the article There’s way too much shit to worry about as a special needs parent
Clozapine / Gavin / Medication Management / My thoughts

There’s way too much shit to worry about as a special needs parent

I've been playing a very frustrating game of phone tag with the pharmacy this afternoon. I need to make sure they either look out for a fax from the lab or call and have it faxed over because Gavin needs his refill tomorrow. I cannot stress enough that Clozapine is the most tightly controlled medication in the United States for a reason. You do not fuck with this medication and it has to be taken seriously. The fucking stress that we experience simply because of this goddamn medication is inexplicable. I also reached out to his doctor and asked that they immediately email with the results of his his labs because I'd like to sleep tonight. They do that anyway but I feel better reminding them. They know how serious…

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February 15, 2018
Read more about the article It seems Hell may just have frozen over
Clozapine / Gavin / My thoughts

It seems Hell may just have frozen over

For the very first time in weeks, we had something happen that hasn't happened in a long time. That something is Gavin's Clozapine prescription being delivered on time. That's right, Gavin's seven day supply of Clozapine showed up on time. This is a big relief because his Clozapine is extremely time sensitive and he can't miss a single dose. He only gets seven days worth of pills at a time and this is a very dangerous medication. I'm really grateful that everything just clicked today and I definitely give credit to the pharmacy for making sure this happened. I'm hoping this is a sign of things to come... ☺

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January 24, 2018
Read more about the article Why is this so fucking complicated?
Clozapine / Gavin / Medication Management / My thoughts

Why is this so fucking complicated?

The goddamn pharmacy didn't get Gavin's Clozapine filled in time for the second week in a row. This is very time sensitive and it's in a set schedule. Gavin gets his bloodwork done on Monday or Tuesday and they pull the labs Tuesday afternoon. The script gets filled and delivered by Wednesday afternoon. It's really not that complicated because it's the same thing each week. I made several phone calls at the beginning of the week to ensure everything was in order. I even called late Tuesday afternoon to remind them to call for the labs and make sure the script was either ready for pickup or delivered by Wednesday afternoon. I was assured this wouldn't be a problem. Thankfully, we have an emergency supply to cover for disruptions like…

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January 18, 2018
Read more about the article We had two close calls with Gavin’s meds this week
Clozapine / Gavin / IVIG Infusion / My thoughts

We had two close calls with Gavin’s meds this week

We've had two pretty significant issues this week, in regards to Gavin's Clozapine and IVIG infusions. I mentioned previously that there was a issue with Gavin's Clozapine refill and that governing body that okays Gavin's refills has decided to make his start over. That means bloodwork every Monday and only seven days worth of pills at a time. Anyway, I had called the pharmacy on Tuesday morning to remind them to pull his lab results because he needed his refill before Wednesday. They assured me that it would be done and delivered that afternoon. Unfortunately, they never showed up and I had to chase them done and make sure it was refilled immediately. They finally refilled it but because it took them so long, they weren't able to deliver it…

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January 6, 2018