This sums up our trip to the @ClevelandClinic today
It's been an incredibly long day, and I'm exhausted. For those tardy to the party, Gavin and I spent the day with our friends at the Cleveland Clinic. He was undergoing neuropsych testing. The purpose was to benchmark his level of function across several categories and compare to his baseline testing from 2014. We've seen what feels like significant regression over the last few years and his neurologist ordered neuropsych testing to establish where his new or current baseline is. Doing so will give us a better understanding of what's changed over the last five years, and we can do to better support him. His testing went well. I think it was roughly here hours long. He finished the entire process this time, and while he did get frustrated, he…