What happened to my son with fragile health today
My son with fragile health was at the Cleveland Clinic today
My son with fragile health was at the Cleveland Clinic today
I'm totally drained but we've made it to the Cleveland Clinic in one piece. Here's what's happening
Praying to find Gavin relief from what's making him miserable
"He had an ultrasound on both his kindneys and his bladder. Then they did an x-ray of his bladder as well. Gavin did great during all three procedures."
"We actually made it to the registration desk only two minutes late. That's pretty fricking amazing considering everything that was working against us."
Today was really rough for Mr. Gavin. He can't ride in the car for very long at all, without feeling like he's going to have an accident. This is the worst it's ever been, by a long shot. I was able to get ahold of his prescribing doctor and we are to immediately drop him down to his previous dose, beginning Thursday (tomorrow) morning. This means we are back down to 600mg of Clozapine a day. We aren't going to stay there though. After running 600mg for seven days, we will begin to increase by 50mg per week for the next four weeks. The idea behind this is that perhaps if we bring him back down and then slowly bring him back up, the side effects might not be so…
It's been a difficult couple of days for Gavin. It's safe to say that the increase in Clozapine has significantly increased the side effects he had begun suffering from about two years ago. Gavin's been struggling with what presents itself as bladder issues. He's constantly running back and forth to the bathroom, without having to actually go. He has the overwhelming urge to go and while sometimes he does indeed have to go, most of the time it's a false alarm. We're having many almost accidents and Gavin is absolutely miserable because he can't go anywhere without this interfering. This isn't a bladder infection because he's been tested and cleared many times. Unfortunately, this is a very rare but documented side effect of Clozapine and is apparently more prominent if…