If you detect some frustration, you’re not wrong

I've been struggling to write as much as I'd like if under better circumstances. This last week of my life has been very challenging, and recovering from it is taking some time. We buried my grandmother a week ago today. All of us are still feeling the impact of this, but especially Emmett. As I'm writing this, he's been up for two days now and cannot fall asleep. Melatonin isn't helping, and he's incredibly stressed out. I just got off the phone with his pediatrician's office, and I'm trying to get them to put him on low dose Prozac. Emmett has his first appointment with Akron Children's Behavioral Health in September, and he's on a cancellation list as well. For some reason, his pediatrician, whom we really like, seems resistant…

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Sometimes I get really frustrated

Lizze and I ended up doing absolutely nothing but binge Netflix while the kids were gone. The trip with my Dad to retrieve some things for my grandma was postponed until next weekend. I'm waiting on a deposit, and until then, things are incredibly tight. There was no option to go do anything, even if we had the money because Lizze wasn't feeling well. I did go walking and spend some time with my grandma, but that was about it. Sometimes it gets frustrating because it would be so nice to have the ability to go do things that many other families get to do. There's always something that prohibits or limits our ability to do these things. Usually, it's money related, or someone isn't feeling well. There are times…

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I was really frustrated with my kids today

I've not talked about this in awhile but my kids seem to not have an inside voice. This isn't something new but it's super annoying and unbelievably disruptive. My kids have always been this way but as they get older, it's gotten worse. They can be standing a foot in front of me but talking to me as though I'm across the room and can't hear them. It's pretty fricking loud. We've always been told it's a sensory thing and that makes sense. We've ruled out hearing issues or or plugged up ears. They simply have three volume settings, off, loud and louder. It's really frustrating, especially when I'm already overwhelmed and desperately needing things to be quiet. It is what it is and it's not their fault but that…

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When your kid is talking about “master bait” and their teacher hears something else entirely

Funny story. I picked up the boys from school and both were in good moods. That's always a good thing. I have to specifically ask them if anything happened that they need to talk about because otherwise, they will rarely raise any concerns on their own. Elliott explained that he had gotten in trouble at school today. He said it was a misunderstanding but he doesn't understand why. He was in line, waiting for people to finish changing after martial arts class today at school. He used the opportunity to talk with one of his friends about a popular game they both play. Elliott was asking his friend for advice on how to battle a boss he was struggling with in the game. His friend suggested that he use master…

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The world just might end today

When people say things like the the world is going to end, it's usually a religious based prediction that ultimately never comes to fruition. When I say the world just might end today, I'm referring to fact that it's raining and trick or treat might not happen. Personally, I don't give a shit if we go or not. Frankly, I don't want the candy in the house anyway. That said, I have 3 kids that are hanging the rest of their lives on whether or not to they go trick or treating today. Emmett is absolutely beside himself because he's afraid the rain won't stop long enough for him to put on his Black Panther costume and knock on strangers doors for candy. Gavin is pretty much the same way.…

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Did you know that many kids with #Autism lack a filter? Here’s a perfect example.

I mentioned in the previous post that we took Gavin to dinner last night cause the boys were gone and we thought it would be nice. We ended up at Chipotle grabbing burritos. Gavin does a pretty good job at ordering for himself but I stayed within earshot because like many kids on the Autism Spectrum, he very much lacks a filter and you never know what's going to cone out of his mouth. What's a filter? A filter is what we call the ability to think something and not blurt it out for everyone to hear, regardless of appropriateness. Some might call it tact but filter is the general term. Anyway, Lizze was getting ready to pay and Gavin was finishing up his order. The person behind the counter…

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So this is what it’s come to

There comes a point in everyones life where you to take pause and ask yourself a very important question. How the fuck did we get here? I had one such moment this morning. As I was eating breakfast, Gavin comes into the room and begins talking about his poop. He has absolutely no sense of this is horribly inappropriate to talk about while someone is eating. We need him to tell us if there's a problem, so we told him to tell us everything and we'll decide if it's important or not. Gavin took that literally and we went from struggling to get any information from him to struggling to help him understand that there's a time amd a place. I'm half listening to him and half trying to block…

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When your child has no filter

One of the toughest lessons I've failed to teach Gavin is that you don't need to say out loud, everything that pops into your head. This has been an ongoing struggle for most of his life and no matter how many times I've talked to him about it, nothing ever changes. This isn't necessarily unique to Gavin. I've heard from countless Autism parents over the years, who face the same struggles. I'm not in Gavin's head and while I can somewhat predict what he's going to say, I can't say that I understand why he says it. At best, the thoughts he says outloud are mildly inappropriate and said in the privacy of our home. At worst, the thoughts he says are horribly inappropriate and said in a very public…

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