The fallout is worse than the cause

The good news is that it's much cooler today. Elliott's still dealing with heat rash, and Emmett won't wear any clothes, but at this moment, the boys are in a good mood.  Gavin's been hiding in his bedroom for most of the day thus far.  Lizze started a new, art based therapy class today. She graduated from the first DBT class yesterday. I'm really proud of her, as I know this isn't close to being easy.  I still haven't heard back from the HVAC company about tomorrow's service. I've no idea what to expect. At the very least, we're looking at $90 for the call to diagnose the problem. From there, it depends on what's covered under warranty, and what isn't. Then of course, there's the labor.  Frankly, the heat…

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#Autism has had an impact on our marriage and here’s how we deal with it

When you're special needs parents, being exhausted, overwhelmed, anxious, and frustrated, is sorta of the status quo. It goes with the territory, and we all experience this from time to time.  Today, was one of those days where Lizze and I were so stressed out, that it created some conflict between the two of us.  Conflict isn't something unheard of in a marriage, and ours is no exception. What often happens, is we become so stressed out, and overwhelmed, we end up allowing it to come between us.  We spend our patience on the boys, and don't always leave enough for each other. We're both spent, and that can lead to silly disagreements, which can lead to some that aren't so silly.  The reality is that when we're so overwhelmed,…

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I’m a frustrated #Autism Dad, and here are a few reasons why

I'm feeling frustrated because so far, the summer isn't going how I'd like it to. I wanted to keep the kids moving, and have fun, but that's not happening as much as I want it to.  Emmett's is in a flare, for the second time since school has been out, and that tends to dictate what we can or cannot do. It involves a great deal of sleepless nights, screaming, and fighting to get him to eat anything. It's exhausting, and seems to last forever.  When he's feeling good and wanting to do something, Elliott will be in a place where he doesn't want to do anything.  Each of the three boys have very different special needs, and they are often in conflict with each other, making life especially difficult.…

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Jamming pencils in my ears

I try to provide insight and inspiration to my readers, by sharing my thoughts and experiences. Sometimes though, the best I can do is share what I'm feeling after a long day of being an Autism and Special Needs parent.  We weren't without our struggles yesterday, but it was a good day.  One of the things I struggled with was Gavin's behaviors. There wasn't anything violent or majorly inappropriate, but that doesn't make it any less exhausting.  If you have ever spent any time with Gavin, you will very quickly learn that he loves playing games on his tablet. You would learn this quickly because it's all he will talk about.  I have listened to him talk about his games to the point I want to jam pencils in my…

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My wife and I have been going back and forth over this

I've been trying to figure out what to do in regards to Emmett's dentist appointment tomorrow. I remembered that we've had a similar situation in the past and the office said that as long as he's not sick, the fever is fine.  The only difference between that and this is his mouthful of sores.  Lizze and I have been going back and forth over this, but it's not an easy decision. He's already not going to school because he's running a fever still. If it were just the fever, we would probably move forward with the appointment.  Unfortunately, he has a mouthful of sores and I'm pretty sure that's something they are going to notice.  He already has another appointment in June. Elliott and Emmett both do actually. They bumped…

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I didn’t realize what the problem was until today

I've come to an important realization today. I used to think that Elliott didn't have any issues with socialization. He has friends and interacts with them throughout the day. When we're out in public, he's the most polite kid in the world, and people comment on it all the time.  All those things are good. They're great actually, because not all kids on the Autism Spectrum have those skills.  Unfortunately, it never occurred to me that what he's been struggling with has to do with social skills. On the surface, everything seems great. It's when you look a bit deeper that the problems become more apparent.  Elliott struggles to understand where people are coming from.  Today is a perfect example.  Elliott was riding the bus home from the field trip…

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Why trying to get my son’s new glasses was so frustrating 

I mentioned last night that when it came to getting Emmett's glasses, I ran into a frustrating situation. Here's what happened, but before going into this, I want to say something first.  Not everyone agrees with public assistance and I get that. There are people who abuse the system and that's wrong. There are however, families like mine, that wouldn't be able to survive without it, especially where insurance is concerned.  This post isn't about being ungrateful or feeling entitled. It's about sharing a struggle that some might not realize exists.  Please don't judge those of us that rely on this program to survive, simply because of those who abuse it.  Emmett's on disability for a variety of reasons, meaning he's on Medicaid. Actually, he's on Buckeye, which is a…

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