Gavin's been spending more and more time, locked away in his room lately. Some of this time revolves around his tablet and some of it around missions. He's not really talking about his missions a whole lot anymore. The last time he said something about them, was a few days ago and it'd been awhile before that. It's difficult to really grasp exactly what's going on with Gavin because while he talks constantly, it's not usually about anything meaningful. He never talks much about how he feels but instead talks a great deal about the games on his tablet. In fact, I don't think he knows how to talk about anything else. After the race yesterday, my parents wanted to treat everyone to some ice cream. It was the five…

I've been very open and honest about how Gavin drives me crazy with his constant talking or repetitive questions. I share that not to make Gavin look bad but to provide insight into just some of the challenges I face as a special needs parent. Maybe some of you can relate and find comfort in not being alone. Anyway, it occurred to me this morning, while taking Gavin for his weekly bloodwork, that I should share another thing he does. It's funny but at the same time, it can also be extremely frustrating as well. I've been working with Gavin every day in regards to remembering that he doesn't need to tell me everything he's thinking. There are many times that Gavin will walk into the room, with a big…

This post was meant for yesterday but didn't get published until now. The morning didn't go as originally planned and perhaps that threw Gavin off a bit. He was definitely off this morning and it presented some frustrating situations for me. For starters, he was freaking out over his IVIG infusion. Gavin was worried about the needles leaking before he even began the procedure. This isn't uncommon for him to worry about, and I can't blame him for worrying, but the degree to which he was worried, interfered with getting his infusion going this morning. Gavin was doing some serious pacing and when he'd stop, he would lean side to side, sorta rocking back and forth. He was seriously stressed. It's sometimes hard to out my finger on what exactly…